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Frank replied to the topic Started Ofev…one week in now in the forum Ofev (Nintedanib) 1 year, 10 months ago
Great news John wish you well I started the Ofev about three months ago and just going off it because I have had adverse reaction in my intestines so I’ll let everyone know what goes on with that but I wish you well I know what it’s like take care
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Frank replied to the topic Shortness of breath and normal oxygen reading in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 11 months ago
Hey guys I am in the same position as the two of you with the exception my doc sees me every 3 months. I am on Ofev as well and no side effects. My bloodox is in the 90’s and sometime the high 80’s. I do have the shortness of breath as well. Didn’t know you could purchase a spirometer but will do that. I do get a PFT every time I go so as to see…[Read more]
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Frank replied to the topic Has OFEV been effective in slowing your progression? in the forum Ofev (Nintedanib) 2 years ago
I’ve been on Ofev a very short period of time basically only two weeks but whether it’s mental or not it seems to be working for me I’m not having as much shortness of breath and I’m able to do some of the things that I was able to do before being diagnosed
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Frank became a registered member 2 years ago
Welcome to the PF forums Frank, thanks for joining us!