@garryg
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Garry Garcia replied to the topic Loss of taste in the forum Esbriet (Pirfenidone) 6 months ago
Since starting Esbriet most of my food taste horrible. It’s a mixture of sweet and metallic.
Absolutely nothing taste good, it’s all sweet with a lingering metallic taste.
I also use Trelegy which may be the cause but I was using it before starting Esbriet without any strange taste.
I’m very close to stop using it and ask to get a prescr…[Read more]
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Garry Garcia posted a new activity comment 6 months, 1 week ago
Thank you Sally, out of all these people you and hristie were the ONLY two to respond.
I am doing exactly as you recommended. I still haven’t gone to three caps three times a day, I’m still in two. We know our bodies better than any schedule or chart that says exactly on this day you will do this.Three months sounds. Ore realistic…this stuff…[Read more]
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Garry Garcia started the topic Starting out with Esbriet in the forum Esbriet (Pirfenidone) 6 months, 2 weeks ago
First thank you for all of the information and first hand experiences from others with IPF taking Esbriet.
Presently I’m on my second week going on my third week moving from two capsules three times a day to three capsules three times a day. If two capsules each dose is bad I can’t imagine three capsules each dose.
First my side effects: Fat…[Read more]
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Garry Garcia became a registered member 6 months, 3 weeks ago
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Garry Garcia changed their profile picture 6 months, 3 weeks ago
Welcome to the PF forums Garry, we’re glad you found us.
Take the Esbriet even slower then recommended to give your body a chance to adjust…back off if you have to. I took almost 2 months to get to 3 three times a day.
Thank you Sally, out of all these people you and hristie were the ONLY two to respond.
I am doing exactly as you recommended. I still haven’t gone to three caps three times a day, I’m still in two. We know our bodies better than any schedule or chart that says exactly on this day you will do this.
Three months sounds. Ore realistic…this stuff…[Read more]