Biography

Name

greyson griffin

Nickname

greyson-griffin

Year of Birth

1978

Gender

Female

Location

NC

Relationship

Caregiver

Short Bio

Mother diagnosed with advanced PF after knee replacement.

she will not live without lung transplant.

Type of Diagnosis

IPF

Treatment / Medical Facility

transplant / duke

Current medication regimen

echmo machine

Lung transplantation status

eligible

Supplemental Oxygen

yes

Best advice for PF symptom management

I have no knowledge of this disease and do understand why it manifested after knee replacement?

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

Other

How long have you or the person that you are caring for had PF?

my mom was diagnosed in august 2019 she most likely has had PF much longer but did not know

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