@greyson griffin•
Joined Sep 2019 •
Not recently active
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Biography
Name
greyson griffin
Nickname
greyson-griffin
Year of Birth
1978
Gender
Female
Location
NC
Relationship
Caregiver
Short Bio
Mother diagnosed with advanced PF after knee replacement.
she will not live without lung transplant.
Type of Diagnosis
IPF
Treatment / Medical Facility
transplant / duke
Current medication regimen
echmo machine
Lung transplantation status
eligible
Supplemental Oxygen
yes
Best advice for PF symptom management
I have no knowledge of this disease and do understand why it manifested after knee replacement?
Are you currently taking an anti-fibrotic medication?
no
How did you find us?
Other
How long have you or the person that you are caring for had PF?
my mom was diagnosed in august 2019 she most likely has had PF much longer but did not know
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