Regina Bolyard
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Regina Bolyard replied to the discussion Ofev exacerbated my arrhythmia! in the forum Ofev (Nintedanib) a year ago
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Regina Bolyard replied to the discussion IPF patient symptoms in the forum Welcome Lounge 2 years ago
Both of my lungs are scarred about equally. My cough is more productive early in the day. By late afternoon I usually have a dry barking cough with little to no mucus. I also experience stabbing pains. Having bronchiectasis (which I do), causes more mucus production. I also have asthmatic symptoms along with the IPF. My airways become… Read more
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Regina Bolyard replied to the discussion IPF patient symptoms in the forum Welcome Lounge 2 years ago
Hi Amy,
My cough also started out dry….about 20 years ago. I was diagnosed with IPF after VATS and MDD about two years ago. I have traction bronchiectasis too, and my cough has gotten more productive as time passes. I have found that staying very well hydrated keeps sticky plugs from developing. Maybe drinking more water and avoiding things… Read more
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Regina Bolyard replied to the discussion Tony Winter ♥️ in the forum In Loving Memory 2 years ago
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Regina Bolyard changed their profile picture 3 years ago
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Regina Bolyard posted an update 3 years ago
One day at a time.
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Regina Bolyard replied to the discussion Biopsy… yes or no? in the forum Upcoming Medical Appointments: Q&As 3 years ago
Why not get a second opinion? It may be that you don’t present with all the classic features of IPF. Have you asked your doctor exactly why they want surgical biopsy? I will share my experience as an example:
Honeycombing was not visible on my HRCT and I had an atypical amount of upper lung involvement. I also had a history of environmental… Read more
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Regina Bolyard replied to the discussion Families of IPF/PF patients getting tested in the forum Welcome Lounge 3 years ago
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Regina Bolyard replied to the discussion Esbriet and ulcers in the forum Esbriet (Pirfenidone) 3 years ago
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Regina Bolyard replied to the discussion Low dose of Esbriet, is it worthwhile? in the forum Diagnosis Information and General Questions 3 years ago
Low dose of Esbriet, is it worthwhile?
This is a really great question. I will be starting back on Esbriet tomorrow after being off treatment for several weeks. We were trying to determine if I was having side effects due to Esbriet or another new medication. When I discontinued Esbriet most of my issues resolved.
I learned from genetic testing that I have a CYP genetic variant… Read more
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