Biography

Name

Mary

Nickname

godwmary

Year of Birth

07/05/1956

Gender

Female

Location

NC

Relationship

Patient

Short Bio

diagnosed over 10 years ago ILD of unknown autoimmune illness.  Great care via Duke and my PCP. On 8 liters now, age 66.  I use e tank when out and about. Exercise 60 min 4 days a week at the gym. Also do water walking.  Very careful when out and about to avoid contagions.  Can no longer fly so happy at home doing short trips. Combivent, albuterol nebulizer and Flovent help with reactive breathing issues.  Chose not to Perdue transplant due to weight and other medical issues.

Type of Diagnosis

familial/genetic PF

Treatment / Medical Facility

Duke/Cone

Current medication regimen

Cellcept/plaquenil/bactrim DS/inhalers

Lung transplantation status

ineligible

Supplemental Oxygen

yes

Best advice for PF symptom management

1. Keep moving

2. use oxygen

3. monitor pulse ox and increase oxygen flow as needed.
4. avoid contagions of all kinds.
5. Daily naps are essential.

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

Facebook

How long have you or the person that you are caring for had PF?

Over 10 years

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