Pulmonary Fibrosis News Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Gweneeth

Home Members Gweneeth
show less show more
Profile picture of Gweneeth

@gweneeth

  • Activity
  • Profile
  • Friends 0
  • Groups 1
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Groups
  • Profile picture of Gweneeth

    Gweneeth replied to the topic What should I expect as IPF progresses? in the forum Caregivers and Spouses 5 months, 2 weeks ago

    I’ve not posted in a few months but thought an update might add to what others have said.  I’ve been under Hospice care for a couple months and can already see how much I’ve declined.  I no longer drive or leave the house.  I’m on an opioid patch as inactivity has increased my back pain.  I’m still on 3L of oxygen but levels will drop to low 8…[Read more]

  • Profile picture of Gweneeth

    Gweneeth replied to the topic What should I expect as IPF progresses? in the forum Caregivers and Spouses 6 months ago

    I’m in my 6th year of IPF and not on any IPF meds. I would highly recommend you contact Hospice as soon as possible. I just started with them and it has made such a difference. They took over everything, meds for comfort, for pain, a CNA to help me shower, she put clean sheets on my bed. I just hired a woman to clean my house (I pay for t…[Read more]

  • Profile picture of Gweneeth

    Gweneeth replied to the topic Inhaler use in the forum Join the Discussion: Welcome to all PF/IPF Patients 6 months, 1 week ago

    I agree with Richard.  I have IPF, Asthma and mild allergies so the inhalers are a God send for me.  I use Albuterol rescue inhaler but it still takes 25 minutes before I cough up junk.  I only use it when needed, mostly in the evening.  Hint: Don’t take it 30 minutes before church.  The cough is worse than a screaming baby.

    Everything with t…[Read more]

  • Profile picture of Gweneeth

    Gweneeth replied to the topic End of Life in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 6 months, 2 weeks ago

    Hi everyone.  I have an update to my last woe-is-me post.  I started on a very low dose of Lexapro 5mg after that post. It’s an antidepressant.  Either it worked or I just got out of my funk but I’m not angry anymore. Doc asked me to stay on it for a while so I will.  I had another function test last Friday and all my numbers were low with DLC…[Read more]

  • Profile picture of Gweneeth

    Gweneeth replied to the topic Depressed and need support in the forum Join the Discussion: Welcome to all PF/IPF Patients 7 months, 2 weeks ago

    Lori, Christie put it beautifully and all the other comments were so helpful to me as well. I have had an enormous, positive response from friends, neighbors and my children (they have surprised me).  Part of it is living in a rural farming community that’s isolated from any major city makes us look out for each other more.  I wish I could sha…[Read more]

  • Profile picture of Gweneeth

    Gweneeth replied to the topic End of Life in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 7 months, 2 weeks ago

    Jon, thanks for your encouraging words. It’s nice to know you also have an ‘Engraved Invitation’ to the Masters table.  That is one of Christine’s truism.  If anyone living in North Carolina, USA wants info on donating organs or whole body donation within this state, I have done the research and will share what I have. Im so glad to have this grou…[Read more]

  • Profile picture of Gweneeth

    Gweneeth replied to the topic End of Life in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 7 months, 2 weeks ago

    Caroline, you made me laugh and to whisper a ‘praise God’. I loved your final phrase, “Engraved invitation”.

    You asked why I chose not to try the meds.  I am highly sensitive to all pain medication and to a lesser degree other medication.  I read all the possible side affects of the meds and didn’t want to deal with those.  The other reason was p…[Read more]

  • Profile picture of Gweneeth

    Gweneeth replied to the topic End of Life in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 7 months, 2 weeks ago

    Thank you to everyone that has shared your stories. There are as many different stories as there are people. I have a couple questions. 1) About once a year I get so angry at this disease because it’s creeping along and I’m sick and tired of thinking about it! It’s not like we can ignore it although I’m trying right now. I haven’t worn my…[Read more]

  • Profile picture of Gweneeth

    Gweneeth replied to the topic Slipping Rib Syndrome in the forum Join the Discussion: Welcome to all PF/IPF Patients 11 months, 3 weeks ago

    To Jill, I talked to my friend and she doesn’t do the type massage you refer to but she’s going to reach out to her community and see what turns up. She wanted to know if you know any names in the Asheville, NC area that I could call. Thank you for your help.

  • Profile picture of Gweneeth

    Gweneeth replied to the topic Slipping Rib Syndrome in the forum Join the Discussion: Welcome to all PF/IPF Patients 11 months, 3 weeks ago

    I understand some of what you said. I know someone that might have some of those credentials

    Pulmonary doc says I won’t survive thoracic surgery and I don’t want that anyway. My regular doc wants me to see a spine man who specializes in steroid injections but I’ve had those before and they don’t work on me. I had spinal fusion from C2-T1 and L2-…[Read more]

  • Profile picture of Gweneeth

    Gweneeth started the topic Slipping Rib Syndrome in the forum Join the Discussion: Welcome to all PF/IPF Patients 11 months, 3 weeks ago

    was in the ER last Sat with terrible pain in my right side. It’s been on and off for a month. All the tests were good. The doc said he thought it was Slipping Rib Syndrome but he had no idea how to fix it. I’ve read on the web that if anti inflammatory meds don’t help then surgery to remove the cartilage from the 12th floating rib is possi…[Read more]

  • Profile picture of Gweneeth

    Gweneeth became a registered member 11 months, 3 weeks ago

    • Profile picture of Christie Patient
      Christie Patient replied 11 months, 3 weeks ago

      Welcome to the PF forums Gweneeth, thanks for joining us!

Profile Photo Brendan

Login

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Search in posts
Search in pages

Who’s Online

There are no users currently online

Newest Topics

  • Mental Health & Chronic Illness Advice by Charlene Marshall
  • When should you start antifibrotics? by Darcy
  • Need to start all over by Rebecca Schrantz-Lilly
  • IPF patient symptoms by Amy
  • IPF stages by Linda

Recent Replies

  • Starting Esbriet
  • IPF patient symptoms
  • Starting Esbriet
  • Starting Esbriet
  • IPF stages

Members

Newest | Active | Popular
  • Profile picture of Raymond White
    Raymond White
    Active 2 hours, 27 minutes ago
  • Profile picture of Margaret
    Margaret
    Active 3 hours, 47 minutes ago
  • Profile picture of Meritt
    Meritt
    Active 5 hours, 20 minutes ago
  • Profile picture of Martin Denny
    Martin Denny
    Active 8 hours, 37 minutes ago
  • Profile picture of Elizabeth Ostrycharz
    Elizabeth Ostrycharz
    Active 8 hours, 44 minutes ago

Forums

  • Coronavirus (COVID-19) and Pulmonary Fibrosis
  • Healthy Recipe Sharing
  • Hobbies & Projects
  • Polls & Quizzes
  • Using Our Forums
  • Flash Briefings & Podcasts
  • Join the Discussion: Welcome to all PF/IPF Patients
  • 30 Days of PF
  • In Loving Memory
  • Wednesday Wins
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Caregivers and Spouses
  • Employment & Pulmonary Fibrosis
  • Clinical Trials
  • Research and Development
  • Esbriet (Pirfenidone)
  • Ofev (Nintedanib)
  • Canadians Living with Pulmonary Fibrosis
  • Pulmonary Fibrosis Awareness & Advocacy
  • PF Caregivers, Family Members & Spouses
  • Living with Pulmonary Fibrosis: 50+
  • Pre/Post Lung Transplant
  • Young Adults Living with Pulmonary Fibrosis (40 & Under)
  • Upcoming Medical Appointments: Q&As
  • Most popular topics
  • Topics with no replies


Pulmonary Fibrosis News Today

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy

Disclaimer

Pulmonary Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2022 All rights reserved.

©2022 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or     Create an account

Lost your password?

Forgot your details?

I remember my details

Create Account