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harold cheatham replied to the topic Split Ofev doseages in the forum Ofev (Nintedanib) 2 months, 2 weeks ago
I have been on OFEV 300mg for 18 months. I’m tired of feeling bad most days. I have nearly a 3 month supply of 150 mg pills. I am wondering if I can safely take a 150 at night and then CUT a 150mg in half to take 12 hours later. I would then theoretically be at 225 mg per day. Has anyone here tried this? Any input will be very much appreciated!
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harold cheatham replied to the topic Possible Cause of IPF – Ammonia ingestion and Statin?? Progressive? in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 3 months ago
I started on OFEV around 6 months ago. Two 150mg daily, 12 hours apart. I’m 72 with mild fibrosis as well as mild emphysema. 70% lung capacity. I’m being tested tomorrow. Hope I still have the 70%! Started the OFEV and I had no issues for the first 3 months. Then unpredictable bouts of horrible diarrhea (sp?) and flatulence began. I began to take…[Read more]
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harold cheatham replied to the topic Started Ofev…one week in now in the forum Ofev (Nintedanib) 1 year, 10 months ago
I am wondering if other OFEV users have the side effects begin a few months after using the drug. I was expecting these issues to begin almost immediately and I was greatly relieved when they did not. I hope this is only temporary for your husband.
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harold cheatham replied to the topic Started Ofev…one week in now in the forum Ofev (Nintedanib) 1 year, 10 months ago
I am a 72 year old male diagnosed with Mild Pulmonary Fibrosis and Mild Emphysema 2 years ago. I have started OFEV one week ago today. Two 150mg per day. Happy to report that I had only one slight diarrhea event 30 minutes after taking my first pill after a large lunch. I was very concerned about the side effects that many folks have. Just t…[Read more]
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harold cheatham became a registered member 2 years ago
Welcome to the PF forums Harold, we’re glad you’ve joined us!