I was diagnosed with IPF in 2016. At that time my symptoms were mild and tolerable. I  never even considered a lung transplant.  Since then my lung function has steadily declined. I was placed on OFEV in 2019. Currently I’m utilizing oxygen when I move about.

On October 11, 2021 I was placed on the lung transplant list at 73 years old. Now, I… Read more

I’m currently of the lung transplant list and my lung transplant surgeon suggested I enroll in a cardio pulmonary rehab  program at the hospital. He stated that the better condition you’re in helps with the recovery after transplant. It’s been a little over a month since I started the program and I can defiantly feel the difference. My o2… Read more

I’m 72.5 years old. Just today I met with the doctor who is the head of  lung transplant department at the University of Chicago Hospital IPF Institute. I was informed based on testing and my excellent  physical health that I would be a candidate for a transplant despite my age. U of C  Hospital has an absolute cut off age of 74 years based… Read more

Hello Pete,

I carry a small zip lock bag with me and when I remove the cannula I simply place the hose in side the bag while still attached to the unit.

Herb C

I was diagnosed with  IPF 4 years ago. When I first get up in the morning I start coughing with mucus. I never cough when laying in bed. I do use 2 liters of oxygen at night. To relieve my coughing in the morning I take a 24 hour Claritin (loratadine) and a generic Allergy spray (Fluticasone Propionate) into each nostril.  That stops my coughing… Read more