August 25, 2021 at 2:01 pm #29685
i have been rejected for transplant by UCLA and Cedars. i turned 70 and have a hiatal hernia. does anyone know of a doctor or hospital nearest to los angeles .i was thinking of St Joseph’s in Phoenix too. what are their criteria for transplants and again which doctors do you recommend. I am new here but have learned a lot already
August 26, 2021 at 4:43 pm #29694JillParticipant
Can’t speak to overall criteria, but we just finished the transplant evaluation process at St Joseph and overall have been quite happy with them. At least so far, we don’t have a dedicated pulmonologist there. They work in a team so we direct questions to our transplant coordinator and she gets an answer for us or tells us who else wen need to contact, like the financial person or whom ever. So far it’s working. I don’t know after his transplant we’ll get assigned a pulmonologist or not, but I don’t think so. Maybe we do. Hope that helps.
- This reply was modified 1 year, 5 months ago by Charlene Marshall. Reason: tagging
August 28, 2021 at 6:32 pm #29727
thanks for you input. we shall see what we shall see
August 28, 2021 at 2:17 pm #29725David OtaParticipant
I was evaluated by University of Colorado in Denver and Dignity St Joe’s in Phoenix in 2010-2015. I do not know what the actual hard cutoffs are on either, but the Dignity program is known to take riskier patients. A friend of ours was rejected at Duke University due to obesity, a prior heart attack and being too close to their age limit of 70. He was accepted at the Dignity/St Joe’s Lung Transplant program and had a successful double lung transplant in 2016 at the age of 70. He is struggling now after 5 years post transplant and a bout of Covid last year. Another friend had COPD, was obese and diabetic, younger that 70. He applied at Dignity/St Joe’s was rejected and applied at University of Colorado and was accepted. He had a successful lung transplant in 2019 in Denver and is doing well. If you are flexible in your location, one transplant centers rejection is another centers successful transplant.
August 28, 2021 at 6:32 pm #29728
such good information. thank you
August 30, 2021 at 1:41 pm #29733
Hi Madonna, I mentioned this in my message to you earlier, but just in case anyone else out there has similar questions… I can’t speak highly enough of UCSF. They do tend to take riskier patients there as well, and are the top hospital in the country as far as long-term success with lung transplants.
As far as age requirements, don’t be discouraged by the “age cutoff”. What is actually meant by that is that your physiological age is within healthy limits to be able to survive the transplant and thrive afterword. For example, someone age 70 who’s in fantastic shape, never smoked, no history of cancer, etc. might physiologically be more like age 60. On the flip side, someone age 60 who has a lot of coexisting conditions, history of smoking, diabetes, whatever… may be more physiologically like a 70 year old. There are many tests that doctors use to determine your physiological age and overall health, so don’t be scared off from trying because you think you are “too old”.
August 31, 2021 at 7:57 am #29746john stylesParticipant
I was told I would need a double lung and liver transplant 3 years ago and the hospital did not do double transplants, on top of that I can not take the medication ( ofev, etc ). I immediately looked at alternatives as my dlco was real low 10.6. I checked the home for all environmental issues, mold, radon, feathers. I started alternative treatments, my inflammation marker was real high but after doing laser it is normal. I also watch this website for news and noticed the the drug with marketing name nexium reduces scaring in lungs in mice, so I continue my nexium. Exercising the lungs and walking, today my dlco 3 years later is 10.5. Hang in there and god bless and good luck.
August 31, 2021 at 3:37 pm #29757HerbCParticipant
I’m 72.5 years old. Just today I met with the doctor who is the head of lung transplant department at the University of Chicago Hospital IPF Institute. I was informed based on testing and my excellent physical health that I would be a candidate for a transplant despite my age. U of C Hospital has an absolute cut off age of 74 years based upon the current health of the transplant recipient. I have under gone 37 different blood draws for risk factors (37 vials of blood) and over 25 different cat, heart scans, numerous x-rays, bone density, swallow, gastric, colonoscopy, endoscopy , dental exams, pft etc. I can’t say enough regarding the staff at U of C Hospital. They are first class. Four months ago when I began testing the center assigned (I have met individually with each) my transplant nurse coordinator, nutritionist, pharmacist, social worker, transplant surgeon, nurse practitioner and the Pulmonologist ( who has followed me since being diagnosed with IPF about 4 years ago). Last week I met with the head of the surgical transplant team to go over transplant procedures and to answer any questions I had regarding the transplant. At each of the meetings with the doctors I had to have my at home post transplant team present. Still there are 2 more test they want to run. Tomorrow I have an appointment with the dermatologist. I will receive the final determination after the transplant team has met to fully discuss my case and hopefully being placed on the transplant list in about a month. I’m encouraged hoping for the best. I’ll keep every one up to date.
August 31, 2021 at 6:40 pm #29769Les ViegasParticipant
I replied to your email this afternoon with details for you to consider – not sure how frequently you access your emails so wanted to alert you via this post.
August 31, 2021 at 11:16 pm #29775Dennis RoweParticipant
I second what Christi said about UCSF!
I was 72 in 2018 when I was accepted as a transplant candidate at UCSF.
When I went for my initial evaluation meeting with their staff, two of my grown children and my wife were with me. UCSF is very cognizant of your support group, and I really feel having so many family members with me really helped with my candidacy at age 72.
In early March 2019 I received my double lung transplant!
Christie is 100% correct!!
September 2, 2021 at 11:19 am #29790Jeff Taylor-JacksonParticipant
Hi Herb C..
I am hoping you pass those last two tests.
Surely after all you have been through so far you will be accepted.
Please come back and let us all know.
I am in the UK, so I hope I might get a positive result on this. (Not applied yet, not ill enough apparently).
September 3, 2021 at 8:31 am #29813Marisa BeardParticipant
So far I have been told by my transplant doctor that I won’t be considered for a transplant unless I lose 30+ pounds (these are the same 30 pounds I have gained since taking prednisone and CellCept). Next week I plan to go on a very restrictive diet to try and get some of the weight off (I haven’t been eating badly up until now so I guess I need to get pretty drastic). I see my transplant doctor in October so I hope to have some success of weight loss by then.
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