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joe hick replied to the topic Passing along what is working for me. in the forum Ofev (Nintedanib) 1 year, 9 months ago
Started just 5 days ago and finding pain in my liver area. I do have liver disease, but was going to have it monitored by blood tests. I’m going to stop it now and infom the Dr. I guess what’s worse liver disease or lung disease?
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joe hick replied to the topic when rejected for transplant in the forum Using Our Forums 1 year, 9 months ago
I’m in the exact same situation. I have to assume no one is going to do all two problems, and /i don’t mean at the same time. I guess I’m screwed.
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joe hick replied to the topic Passing along what is working for me. in the forum Ofev (Nintedanib) 1 year, 9 months ago
Started taking OFEV a few days ago. No issues so far, but have a liver disease that needs to blood tested once a month. I’m hoping I can continue.
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joe hick replied to the topic Combo meds in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 10 months ago
Is there one med better than the other in regards to ofev and Esibriet?
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joe hick started the topic Combo meds in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 10 months ago
Can TYVASO be taken along with ofev?
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joe hick replied to the topic Update on EGCG Green Tea Extract + Pulmonary Fibrosis Project in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 11 months ago
Can anyone give me the exact name of the Green Tea Extract used in the study??
Joe Hick
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joe hick replied to the topic EGCG Green Tea Extract in the forum Clinical Trials 3 years, 1 month ago
I bought Nusapure off of Amazon. The recommended dosage from them is 2 capsules per day, and they are 1000mg. I am going to stay with the one capsule per day. I just started this a few days ago, so nothing to report as of yet, by the way they are made in the USA.
What I am impressed with is that this study was reported in the, New England Journal…[Read more]
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joe hick replied to the topic EGCG Green Tea Extract in the forum Clinical Trials 3 years, 1 month ago
Started taking it yesterday. 1000 mg to start, than, 2000 mg. We will see.
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joe hick replied to the topic Possible target found for idiopathic pulmonary fibrosis treatment in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 1 month ago
I guess my question is with this disease and the known eventuality why wouldn’t someone with advanced IPF be willing to test some of these drugs. I know I would sign over any liability to anyone or Co. that was willing to use me, knowing I had little options.
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joe hick replied to the topic COVID-19 and Lung Disease in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 3 years, 1 month ago
My hope and as I have mentioned on the forums here is, with all the research being done on covid-19 it will lead to some type of treatment or cure to PF.
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joe hick replied to the topic New treatments in the forum Clinical Trials 3 years, 2 months ago
Let’s hope, your right. Unfortunately it has to be at the expense of others. The only thing I am worried about are those who will suffer now from fibrosis due to covid -19.
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joe hick replied to the topic New treatments in the forum Clinical Trials 3 years, 2 months ago
I think this forum is a good start by getting the word out. It will tend to have an osmosis effect in the pulmonary research field. We all need to advocate for a cure for this disease.
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joe hick started the topic New treatments in the forum Clinical Trials 3 years, 2 months ago
With the advent of this horrific virus and the attacks on the pulmonary functions. The multitude of testing and investigative research around the world it would only lend to possible cures for PF. Let’s hope there is some good that comes out of something so bad, for both, stricken with these two horrible diseases.
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joe hick replied to the topic New treatments in the forum
Research and Development 3 years, 3 months agoThanks Mark. Looking for that study that will come up with a cure. Just hoping and praying
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joe hick started the topic New treatments in the forum
Research and Development 3 years, 3 months agoAre there any know studies going on for the cure of IPF? If so where can I investigate?
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joe hick posted a new activity comment 3 years, 3 months ago
Thank you. Look forward to any news on this research.
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joe hick posted a new activity comment 3 years, 3 months ago
Thanks. Will look forward to any info on what seems to be a promising drug.
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joe hick posted a new activity comment 3 years, 4 months ago
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Hi @joehick0529,
Ah, this is really great information, thanks for sending it. I don’t know too much about this but I am asking our team at BioNews if one of our science writers may be able to look into it for you a bit more. I haven’t followed up as to where it stands right now or obtained more information about it, but stay tuned and I’ll see if…[Read more]
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joe hick posted a new activity comment 3 years, 4 months ago
Sorry the trial # is N115, and I have attached a link to what I have on it. Any info about this would be appreciated.
https://www.ptcommunity.com/wire/rx-globally-patented-non-steroidal-nasal-spray-all-lung-diseases-including-pulmonary-fibrosis…[Read more]-
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Hi @joehick0529,
Ah, this is really great information, thanks for sending it. I don’t know too much about this but I am asking our team at BioNews if one of our science writers may be able to look into it for you a bit more. I haven’t followed up as to where it stands right now or obtained more information about it, but stay tuned and I’ll see if…[Read more]
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joe hick posted an update 3 years, 4 months ago
Looking for info on, N117?
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Hi @joehick0529 — I’m not sure what N117 is, can you provide us with some context? I haven’t been as immersed in the research as I normally am (please forgive me if this is a dumb question) as I am trying to recover from a major exacerbation. I can see if there is anything I can find out about it for you though. Are you wanting a research paper…[Read more]
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Sorry the trial # is N115, and I have attached a link to what I have on it. Any info about this would be appreciated.
https://www.ptcommunity.com/wire/rx-globally-patented-non-steroidal-nasal-spray-all-lung-diseases-including-pulmonary-fibrosis…[Read more]-
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Hi @joehick0529,
Ah, this is really great information, thanks for sending it. I don’t know too much about this but I am asking our team at BioNews if one of our science writers may be able to look into it for you a bit more. I haven’t followed up as to where it stands right now or obtained more information about it, but stay tuned and I’ll see if…[Read more]
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Thanks. Will look forward to any info on what seems to be a promising drug.
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Hi @joehick0529, I connected with our Editor-in-Chief here at BioNews and she let me know that a news column was published on N115 in August when the results of the study emerged. She also let me know that it doesn’t look like anymore information has been released since then, so a January press release from the company is misleading. Hopefully…[Read more]
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Thank you. Look forward to any news on this research.
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Hi @joehick0529, I connected with our Editor-in-Chief here at BioNews and she let me know that a news column was published on N115 in August when the results of the study emerged. She also let me know that it doesn’t look like anymore information has been released since then, so a January press release from the company is misleading. Hopefully…[Read more]
Thank you. Look forward to any news on this research.