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joe hick

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@joehick0529

Looking for info on, N117? View
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  • Profile picture of joe hick

    joe hick replied to the topic Passing along what is working for me. in the forum Ofev (Nintedanib) 1 year, 6 months ago

    Started just 5 days ago and finding pain in my liver area. I do have liver disease,  but was going to have it monitored by blood tests. I’m going to stop it now and infom the Dr. I guess what’s worse liver disease or lung disease?

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    joe hick replied to the topic when rejected for transplant in the forum Using Our Forums 1 year, 6 months ago

    I’m in the exact same situation. I have to assume no one is going to do all two problems, and /i don’t mean at the same time. I guess I’m screwed.

  • Profile picture of joe hick

    joe hick replied to the topic Passing along what is working for me. in the forum Ofev (Nintedanib) 1 year, 6 months ago

    Started taking OFEV a few days ago. No issues so far, but have a liver disease that needs to blood tested once a month. I’m hoping I can continue.

  • Profile picture of joe hick

    joe hick replied to the topic Combo meds in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 8 months ago

    Is there one med better than the other in regards to ofev and Esibriet?

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    joe hick started the topic Combo meds in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 8 months ago

    Can TYVASO be taken along with ofev?

  • Profile picture of joe hick

    joe hick replied to the topic Update on EGCG Green Tea Extract + Pulmonary Fibrosis Project in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 8 months ago

    Can anyone give me the exact name of the Green Tea Extract used in the study??

    Joe Hick

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    joe hick replied to the topic EGCG Green Tea Extract in the forum Clinical Trials 2 years, 10 months ago

    I bought Nusapure off of Amazon. The recommended dosage from them is 2 capsules per day, and they are 1000mg. I am going to stay with the one capsule per day. I just started this a few days ago, so nothing to report as of yet, by the way they are made in the USA.

    What I am impressed with is that this study was reported in the, New England Journal…[Read more]

  • Profile picture of joe hick

    joe hick replied to the topic EGCG Green Tea Extract in the forum Clinical Trials 2 years, 10 months ago

    Started taking it yesterday. 1000 mg to start, than, 2000 mg. We will see.

  • Profile picture of joe hick

    joe hick replied to the topic Possible target found for idiopathic pulmonary fibrosis treatment in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 11 months ago

    I guess my question is with this disease and the known eventuality why wouldn’t someone with advanced IPF be willing to  test some of these drugs. I know I would sign over any liability to anyone or Co. that was willing to use me, knowing I had little options.

  • Profile picture of joe hick

    joe hick replied to the topic COVID-19 and Lung Disease in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 2 years, 11 months ago

    My hope and as I have mentioned on the forums here is, with all the research being done on covid-19 it will lead to some type of treatment or cure to PF.

     

  • Profile picture of joe hick

    joe hick replied to the topic New treatments in the forum Clinical Trials 2 years, 11 months ago

    Let’s hope, your right. Unfortunately it has to be at the expense of others. The only thing I am worried about are those who will suffer now from fibrosis due to covid -19.

  • Profile picture of joe hick

    joe hick replied to the topic New treatments in the forum Clinical Trials 2 years, 11 months ago

    I think this forum is a good start by getting the word out. It will tend to have an osmosis effect in the pulmonary research field. We all need to advocate for a cure for this disease.

  • Profile picture of joe hick

    joe hick started the topic New treatments in the forum Clinical Trials 2 years, 11 months ago

    With the advent of this horrific virus and the attacks on the pulmonary functions. The multitude of testing and investigative research around the world it would only lend to possible cures for PF. Let’s hope there is some good that comes out of something so bad, for both, stricken with these two horrible diseases.

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    joe hick replied to the topic New treatments in the forum Group logo of Research and DevelopmentResearch and Development 3 years, 1 month ago

    Thanks Mark. Looking for that study that will come up with a cure. Just hoping and praying

  • Profile picture of joe hick

    joe hick started the topic New treatments in the forum Group logo of Research and DevelopmentResearch and Development 3 years, 1 month ago

    Are there any know studies going on for the cure of IPF? If so where can I investigate?

  • Profile picture of joe hick

    joe hick posted a new activity comment 3 years, 1 month ago

    Thank you. Look forward to any news on this research.

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  • Profile picture of joe hick

    joe hick posted a new activity comment 3 years, 1 month ago

    Thanks. Will look forward to any info on what seems to be a promising drug.

    View Conversation
    • Profile picture of Charlene Marshall
      Charlene Marshall replied 3 years, 1 month ago

      Hi @joehick0529, I connected with our Editor-in-Chief here at BioNews and she let me know that a news column was published on N115 in August when the results of the study emerged. She also let me know that it doesn’t look like anymore information has been released since then, so a January press release from the company is misleading. Hopefully…[Read more]

      • Profile picture of joe hick
        joe hick replied 3 years, 1 month ago

        Thank you. Look forward to any news on this research.

  • Profile picture of joe hick

    joe hick posted a new activity comment 3 years, 1 month ago

    Another source for this.
    https://www.prnewswire.com/news-releases/rx-globally-patented-non-steroidal-nasal-spray-for-all-lung-diseases-including-pulmonary-fibrosis-cf-copd-unmet-needs-with-no-known-side-effects-that-can-also-be-used-to-deliver-antivirals-antimicrobials-insulin-and-other-dr-300986730.html

    View Conversation
    • Profile picture of Charlene Marshall
      Charlene Marshall replied 3 years, 1 month ago

      Hi @joehick0529,

      Ah, this is really great information, thanks for sending it. I don’t know too much about this but I am asking our team at BioNews if one of our science writers may be able to look into it for you a bit more. I haven’t followed up as to where it stands right now or obtained more information about it, but stay tuned and I’ll see if…[Read more]

  • Profile picture of joe hick

    joe hick posted a new activity comment 3 years, 1 month ago

    Sorry the trial # is N115, and I have attached a link to what I have on it. Any info about this would be appreciated.
    https://www.ptcommunity.com/wire/rx-globally-patented-non-steroidal-nasal-spray-all-lung-diseases-including-pulmonary-fibrosis…[Read more]

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    • Profile picture of joe hick
      joe hick replied 3 years, 1 month ago

      Another source for this.
      https://www.prnewswire.com/news-releases/rx-globally-patented-non-steroidal-nasal-spray-for-all-lung-diseases-including-pulmonary-fibrosis-cf-copd-unmet-needs-with-no-known-side-effects-that-can-also-be-used-to-deliver-antivirals-antimicrobials-insulin-and-other-dr-300986730.html

      • Profile picture of Charlene Marshall
        Charlene Marshall replied 3 years, 1 month ago

        Hi @joehick0529,

        Ah, this is really great information, thanks for sending it. I don’t know too much about this but I am asking our team at BioNews if one of our science writers may be able to look into it for you a bit more. I haven’t followed up as to where it stands right now or obtained more information about it, but stay tuned and I’ll see if…[Read more]

  • Profile picture of joe hick

    joe hick posted an update 3 years, 1 month ago

    Looking for info on, N117?

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 3 years, 1 month ago

      Hi @joehick0529 — I’m not sure what N117 is, can you provide us with some context? I haven’t been as immersed in the research as I normally am (please forgive me if this is a dumb question) as I am trying to recover from a major exacerbation. I can see if there is anything I can find out about it for you though. Are you wanting a research paper…[Read more]

      • Profile picture of joe hick
        joe hick replied 3 years, 1 month ago

        Sorry the trial # is N115, and I have attached a link to what I have on it. Any info about this would be appreciated.
        https://www.ptcommunity.com/wire/rx-globally-patented-non-steroidal-nasal-spray-all-lung-diseases-including-pulmonary-fibrosis…[Read more]

        • Profile picture of joe hick
          joe hick replied 3 years, 1 month ago

          Another source for this.
          https://www.prnewswire.com/news-releases/rx-globally-patented-non-steroidal-nasal-spray-for-all-lung-diseases-including-pulmonary-fibrosis-cf-copd-unmet-needs-with-no-known-side-effects-that-can-also-be-used-to-deliver-antivirals-antimicrobials-insulin-and-other-dr-300986730.html

          • Profile picture of Charlene Marshall
            Charlene Marshall replied 3 years, 1 month ago

            Hi @joehick0529,

            Ah, this is really great information, thanks for sending it. I don’t know too much about this but I am asking our team at BioNews if one of our science writers may be able to look into it for you a bit more. I haven’t followed up as to where it stands right now or obtained more information about it, but stay tuned and I’ll see if…[Read more]

    • Profile picture of joe hick
      joe hick replied 3 years, 1 month ago

      Thanks. Will look forward to any info on what seems to be a promising drug.

      • Profile picture of Charlene Marshall
        Charlene Marshall replied 3 years, 1 month ago

        Hi @joehick0529, I connected with our Editor-in-Chief here at BioNews and she let me know that a news column was published on N115 in August when the results of the study emerged. She also let me know that it doesn’t look like anymore information has been released since then, so a January press release from the company is misleading. Hopefully…[Read more]

        • Profile picture of joe hick
          joe hick replied 3 years, 1 month ago

          Thank you. Look forward to any news on this research.

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