Biography

Name

Madonna Kennedy

Nickname

madonna-kennedy

Year of Birth

05/12/1951

Gender

Female

Location

los angeles

Relationship

Patient

Short Bio

i have been healthy my whole life . my weak spot was my sinus’s and my lungs with viral infections . in 2019 i was to go to have a hiatal hernia which was grapefruit size fixed. before surgery i was to visit a pulmonologist and a cardiologist.the cardiologist said no problem with surgery but the pulmonologist said no go see a specialist at UCLA.  long story short covid came and my appointment was dropped til august  by this time my lungs had deteriorated to the point of a transplant .what a surprise! Now i am 70 and still have the hernia and both ucla and Cedars sinai will not do a transplant . So here i sit on oxygen 24/7 and a wheelchair to get around .I am hoping for some transplant advice and tips for successful day to day living

Type of Diagnosis

PF of known aetiology

Treatment / Medical Facility

UCLA and Torrance Memorial

Current medication regimen

prilosec.and one other ( can’t remember the name) antacid for gerd

Lung transplantation status

to be determined

Supplemental Oxygen

yes

Best advice for PF symptom management

take all help when offered

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

Column Post

How long have you or the person that you are caring for had PF?

diagnosed 2019. it is idiopathic so i am really not sure when it all began

Privacy Policy and Terms of Use

I agree