Biography

Name

Ian Neilson
Nickname

ian-neilson
Year of Birth

1952
Gender

Male
Location

Maine
Relationship

Patient
Short Bio

69 year old recently retired surgeon.  Diagnosed with ILD in 2016.  Family history of ILD.   On pirfenidone since 2016. Remarkably no major side effects and no discernible progression in symptoms.
Type of Diagnosis

familial/genetic PF
Treatment / Medical Facility

Brigham and Women's Hospital Boston
Current medication regimen

Pirfenidone, Omprazole and a statin
Lung transplantation status

to be determined
Supplemental Oxygen

no
Best advice for PF symptom management

Exercise (Peloton) and get all the vaccinations that you are eligible for.
Are you currently taking an anti-fibrotic medication?

yes
How did you find us?

PF News Website
How long have you or the person that you are caring for had PF?

Diagnosed in 2016. Symptoms since 2015
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