Ian Neilson

Name

Ian Neilson

Year of Birth

1952

Gender

Male

Location

Maine

Relationship

Patient

Short Bio

69 year old recently retired surgeon.  Diagnosed with ILD in 2016.  Family history of ILD.   On pirfenidone since 2016. Remarkably no major side effects and no discernible progression in symptoms.

Type of Diagnosis

familial/genetic PF

Treatment / Medical Facility

Brigham and Women's Hospital Boston

Current medication regimen

Pirfenidone, Omprazole and a statin

Lung transplantation status

to be determined

Supplemental Oxygen

no

Best advice for PF symptom management

Exercise (Peloton) and get all the vaccinations that you are eligible for.

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

Diagnosed in 2016. Symptoms since 2015

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