Biography

Name

Cecilia Aguilar

Nickname

cecilia-aguilar

Year of Birth

10/14/1964

Gender

Female

Location

USA

Relationship

Patient

Short Bio

I was diagnosed with Systemic Lupus Erythomatosis in 1979.  I was 14 y/o.  I have Lupus Nephritis, Antiphospholipid Syndrome.  I have had R & L sided TIA’s.  I have been on Cytoxan twice.  I have been taking Prednisone sense 1979.  I am taking Coumadin.  I was just diagnosed with IPF on 6/7/21.  I have not taken the Esbriet yet.

I am a Registered Nurse. I no longer practice nursing.  I am blessed with a family and a large amount of friends for my support system.  I have an 11 y/o Pug, who is @ my feet at all times.  I work as a Healthcare Advocate.  My hobby is to chrochet & knitt blankets.  I am the eldest of 5 siblings.

Type of Diagnosis

IPF

Treatment / Medical Facility

Esbriet / Whittier PIH

Current medication regimen

Prednisone, Imuran, Cellcept, Cozaar, Coumadin, Lipitor, Alaway, Calcium, Omega 3, Folic Acid, Iron, Vit D, Vit E

Lung transplantation status

considering later

Supplemental Oxygen

no

Best advice for PF symptom management

I do Chair Yoga 3 times a week and walk an hour 3 times a week,

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

Physician

How long have you or the person that you are caring for had PF?

Diagnosed 6/7/21

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