Isaura Santos

Steve Dragoo was initially diagnosed with interstitial lung disease in Manila in October 2016 and just thought he had walking pneumonia. Yet, from early 2017, he struggled to walk far and keep up with his wife.

His health worsened in 2018, and that’s when Steve returned to the U.S. without his wife, since she was still working in Manila. He…[Read more]

We hear about Tom Johnson, and how he was diagnosed with idiopathic pulmonary fibrosis (IPF) nearly 12 months ago. His pulmonologist originally gave him a life expectancy of 3–15+ years. One year has now gone by since then.

At 74 years of age, Tom feels reconciled with the “finality” of IPF — he believes he has lived a long life, always awa…[Read more]

Found this video and thought it could be interesting to start this conversation. I didn’t find anything here in the forums about the relationship between this condition. Do you guys know much about this?

When we shared this story for the first time I remember reading so many comments. 🙂

It’s a strong question, “What do you feat most”.

Here is the story, hope to hear from you.

Kindly,

Isaura

“Being diagnosed with pulmonary fibrosis can be terrifying and confusing and often takes a long…[Read more]