Jackie Kalina
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Hi Kate. I was diagnosed in April of this year. No cough or oxygen yet. I am VERY tired and do not know if it is IPF OR the meds OFEV? My oxygen rarely drops below 90’s. I can walk for 15 minutes no problem but I feel like a sloth. NO uphill. With the Covid, CA fires and smoke and heat at 102 I am house quarantined. Wondering if you were on OFEV? Thanks, Jackie I will be 80 next month.
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Petting my outside cat set off an asthma attack. Went to doctor and got an inhaler. Did not get better. Dr ordered an exray and something was seen. Next got a cat scan and was told I had IPF, go to pulmonary dr.
I did. He confirmed the diagnosis and said come back in two weeks. Scheduled lots of blood tests, pulmonary
tests. I asked where exactly was the scarring? He said we will do a biopsy. Come back in 4 months! Just don’t feel I am getting much information. What are we waiting for? Have read they don’t do biopsy unless they aren’t sure of cause. I am in Limbo, hoping, praying it could be something else. I know I have “something” wrong in my lungs, I can feel it. Feels like pneumonia. No wheezing yet.But, Oxygen levels are in the 90’s and have dipped when I am exercising. I walk and I have no cough. I have an oximeter and practice breathing with a spirometer. Usually 2500 ml volume. My joints do ache in the morning. Doctor just didn’t give me the findings from breath tests. Why not? Says I am highly allergic to bird feathers. Could it be something else? Got rid of my down pillows and comforter. Going to a new doctor next week. I just feel I am sitting on a powder keg waiting!!!! Any suggestions??