NanaJane

Thinking about you Sandra.  Hope your meeting with the surgeon went well.    Best,  Jane

Thanks for this article – I have been wondering about some of these possible irritants.  I needed a haircut this week and went by my usual walk-in salon about 4:30 the other day.  As soon as I poked my head in the door the smells of the sprays, gels and dyes was overwhelming.  I went home and called my favorite hairdresser there and she agreed to…[Read more]

I’m glad you switched hospice services Megan.  I’ve been through end of life with both parents in hospice and want to let everyone know that they are not all created equally.  If you are unsatisfied with one service, look for another.

I asked this question somewhere else and then found this forum topic.  I was diagnosed with Advanced Small Cell Lung Cancer that had spread to my liver exactly one year ago.  This looked devastating and fatal at the time but somehow it was easier to tell people that I had SCLC – at least they knew what it was and realized without my saying it t…[Read more]

I’m unsure about the best way to conduct a support group but am willing to try all the suggested ways.  I agree that nutrition is an important subject.  I live alone and find that feeding myself well is a real challenge.  Others bring me meals a couple of times a week but I fall back to the “cereal for dinner” habit much more than I should.  I als…[Read more]

Hi Sandra – I’ve just joined this forum and it’s so nice to receive a your message.  I am on oxygen at night and anytime I am active for more than 5 minutes during the day.  Fortunately a friend loaned ma a portable concentrator so I was able to go get a haircut yesterday and will go to dinner at a friend’s tonight.  I’m finding all of this a bi…[Read more]

Hi all –

I’m actually a bit grateful for IPF since it has forced me to resign from committees, slow down and try to take each day by itself.  I’ve played around with watercolor and sketching and also textile collage for several years but always felt that it was a waste of good time.  Now I can stay in my workroom for hours just puttering around o…[Read more]

Hi Charlene –

I use a smart phone app called CALM.  It provides guided meditations, white noise choices and music but my favorite piece is the Sleeptime Stories section.  It offers a large variety of 30 – 40 minute stories narrated by folks with calm, quiet voices.   You choose the story you want, snuggle into your pillow and covers, start the…[Read more]