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NanaJane

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@janekirsch

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    NanaJane replied to the topic Hobbies of Our Talented Forum Members! in the forum Hobbies & Projects 4 years, 4 months ago

    Thinking about you Sandra.  Hope your meeting with the surgeon went well.    Best,  Jane

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    NanaJane replied to the topic My IPF Makes Me Protective of My Lungs in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 years, 5 months ago

    Thanks for this article – I have been wondering about some of these possible irritants.  I needed a haircut this week and went by my usual walk-in salon about 4:30 the other day.  As soon as I poked my head in the door the smells of the sprays, gels and dyes was overwhelming.  I went home and called my favorite hairdresser there and she agreed to…[Read more]

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    NanaJane replied to the topic O2L amount in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 years, 5 months ago

    I’m glad you switched hospice services Megan.  I’ve been through end of life with both parents in hospice and want to let everyone know that they are not all created equally.  If you are unsatisfied with one service, look for another.

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    NanaJane replied to the topic How to Tell Others You Have Pulmonary Fibrosis in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 years, 5 months ago

    I asked this question somewhere else and then found this forum topic.  I was diagnosed with Advanced Small Cell Lung Cancer that had spread to my liver exactly one year ago.  This looked devastating and fatal at the time but somehow it was easier to tell people that I had SCLC – at least they knew what it was and realized without my saying it t…[Read more]

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    NanaJane replied to the topic PF support group survey in the forum Polls & Quizzes 4 years, 5 months ago

    I’m unsure about the best way to conduct a support group but am willing to try all the suggested ways.  I agree that nutrition is an important subject.  I live alone and find that feeding myself well is a real challenge.  Others bring me meals a couple of times a week but I fall back to the “cereal for dinner” habit much more than I should.  I als…[Read more]

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    NanaJane replied to the topic Hobbies of Our Talented Forum Members! in the forum Hobbies & Projects 4 years, 5 months ago

    Hi Sandra – I’ve just joined this forum and it’s so nice to receive a your message.  I am on oxygen at night and anytime I am active for more than 5 minutes during the day.  Fortunately a friend loaned ma a portable concentrator so I was able to go get a haircut yesterday and will go to dinner at a friend’s tonight.  I’m finding all of this a bi…[Read more]

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    NanaJane replied to the topic Hobbies of Our Talented Forum Members! in the forum Hobbies & Projects 4 years, 5 months ago

    Hi all –

    I’m actually a bit grateful for IPF since it has forced me to resign from committees, slow down and try to take each day by itself.  I’ve played around with watercolor and sketching and also textile collage for several years but always felt that it was a waste of good time.  Now I can stay in my workroom for hours just puttering around o…[Read more]

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    NanaJane posted a new activity comment 4 years, 5 months ago

    I am so grateful that I found this site this am. I have had so many questions and fears of the unknown with this IPF diagnosis that I received in October after “living with” metastatic lung cancer for nine months. The cancer is practically gone and so far, staying put. This new disease is a real kick in the butt and I’ve been angry, sad and…[Read more]

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      Charlene Marshall replied 4 years, 5 months ago

      Hi @janekirsch, thank you so much for writing and I’m also so glad you’ve found us. This group of people (or “online community” as I like to refer to us as) are incredibly helpful, welcoming and supportive. They will try their best to help you if they can, or at least share their experiences as we’re all in this together. I remember the fears and…[Read more]

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    NanaJane changed their profile picture 4 years, 5 months ago

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    NanaJane's profile was updated 4 years, 5 months ago

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 4 years, 5 months ago

      Love the photo you added NanaJane!

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    NanaJane replied to the topic Tips to Settling Your Mind as a Patient with Pulmonary Fibrosis in the forum Living with Pulmonary Fibrosis: 50+ 4 years, 5 months ago

    Hi Charlene –

    I use a smart phone app called CALM.  It provides guided meditations, white noise choices and music but my favorite piece is the Sleeptime Stories section.  It offers a large variety of 30 – 40 minute stories narrated by folks with calm, quiet voices.   You choose the story you want, snuggle into your pillow and covers, start the…[Read more]

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    NanaJane became a registered member 4 years, 5 months ago

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 4 years, 5 months ago

      Thanks for joining the PF forums Kirsch. Welcome!

      • Profile picture of NanaJane
        NanaJane replied 4 years, 5 months ago

        I am so grateful that I found this site this am. I have had so many questions and fears of the unknown with this IPF diagnosis that I received in October after “living with” metastatic lung cancer for nine months. The cancer is practically gone and so far, staying put. This new disease is a real kick in the butt and I’ve been angry, sad and…[Read more]

        • Profile picture of Charlene Marshall
          Charlene Marshall replied 4 years, 5 months ago

          Hi @janekirsch, thank you so much for writing and I’m also so glad you’ve found us. This group of people (or “online community” as I like to refer to us as) are incredibly helpful, welcoming and supportive. They will try their best to help you if they can, or at least share their experiences as we’re all in this together. I remember the fears and…[Read more]

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