• Jay became a registered member 1 year, 7 months ago

    • Hello Jay, thank you for joining your pulmonary fibrosis forum. Congrats on being the 2000 member. Welcome!

    • Hi,
      Thanks for letting me join. I’m totally freaking out right now. I saw a pulmonologist 6 months ago and he order a chest X-ray. He said I was fine. I still feel out of breathe and a general fatigue. I just had another Chest X-ray that showed bronchitis according to the ER doc. Yesterday I had an appointment and the doctor said he wants to check for infiltrative lung disease or a blood clot. He doesn’t think a clot is likely. I have a CT tomorrow with contrast. I’m freaking the hell out right now. I broke down yesterday. I’m only 26 years old.

      • Hi,
        I know the survival rate is bad. My pulse ox is always above 95% even with exercise but I still literally feel out of breathe and like I’m on my death bed. I don’t have a cough. Chest pain and I feel my throat closing on me. I feel tired from even bending over or brushing my teeth.

      • Hello Jay, I’m sorry to hear about your situation. I’m hoping for the best for you. You are young to be going through this ordeal. I’m hoping the CT reveals NO SCARRING. I’m praying for you. Good luck tomorrow! Please keep us updated. Mark

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