Forum Replies Created

  • john-eames

    Member
    August 18, 2023 at 3:33 pm in reply to: Saracatinib

    That sounds great!  Will be looking forward to the results.

  • john-eames

    Member
    August 16, 2023 at 12:29 pm in reply to: Saracatinib

    Have been trying to find out if it is availabe by prescription but don’t think so. It is extremely expensive. $180 for 50mg pill. It is  available in India but need to research that.

  • john-eames

    Member
    August 15, 2023 at 3:08 pm in reply to: Saracatinib

    It is in clinical trials and looks very promising because it not only slows the progression but reverses the scarring.

  • john-eames

    Member
    October 18, 2022 at 3:10 pm in reply to: OFEV cost and assistance

    Hi Gina

    Thanks for the information. I have not pursued any other avenues re:OFEV cost/payment since my application was denied. Now Open door keeps calling me to re-apply. Don’t know if I want to go on OFEV after reading the side effects. Think I will just monitor the pulmonary function test and see what happens.

  • john-eames

    Member
    July 29, 2022 at 7:09 pm in reply to: OFEV cost and assistance

    Hi Ray

    Thanks for the great information. I will follow up with the India lead and see what happens.

    It is unconscionable to charge $3000/month for a life saving drug.

    Will let you know the progress.

    Thans Again

    John