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Jeffrey Carver replied to the topic Leaving the house on 4LPM oxygen? in the forum Diagnosis Information and General Questions 2 weeks, 4 days ago
Yes, I am on a home-fill system provided by the company that supplies my big concentrator. It works quite well. I have a small tank, good for about an hour at pulse-5, and a larger tank that lasts a good bit longer. Either one can go in a regular backpack, with some bubble wrap jammed around it to hold it steady. It doesn’t entirely replace the…[Read more]
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Jeffrey Carver replied to the topic Leaving the house on 4LPM oxygen? in the forum Diagnosis Information and General Questions 2 weeks, 4 days ago
>> Inogen One G5 portable concentrator that goes to 5 liters on demand
Again, that’s not really 5 liters. It’s just setting 5, and the actual amount delivered is considerably less than 5 L. It’s very confusing, and I wish they had come up with a better way of measuring these things. Even my pulmonologist was confused by it.
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Jeffrey Carver replied to the topic Leaving the house on 4LPM oxygen? in the forum Diagnosis Information and General Questions 3 weeks ago
Randy, I wonder if your Inogen is malfunctioning. Have you seen any alerts on the screen? I recently had to replace the sieve columns in mine. (Very easy to do. I bought mine directly from Inogen.) There’s a very distinctive icon that appears on the screen when the columns are spent.
Do you see the little green light flash every time you take a breath?
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Jeffrey Carver replied to the topic Leaving the house on 4LPM oxygen? in the forum Diagnosis Information and General Questions 1 month ago
Your Inogen goes to #6. That is not the same as 6LPM, and in fact is quite a bit less, because it is pulsed delivery. (I have the same model.) There is no direct correlation between LPM and the numbers you see on pulsed devices. They are different scales.
My own experience suggests that 5 on my Inogen does not give me as much boost as 4LPM on my…[Read more]
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Jeffrey Carver replied to the topic Starting out with Esbriet in the forum Esbriet (Pirfenidone) 1 month, 2 weeks ago
I’m 73 and have been on Pirfenidone (Esbriet) for a few months now. I had trouble at first, mainly with fatigue and my sleep being messed up. I paused at 6 tabs/day, cut back to 4 for a couple of weeks, and then started increasing. It went better the second time, and I’m now taking the full dose of 9/day. I still get some fatigue, but overall it’s…[Read more]
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Jeffrey Carver replied to the topic Are air purifiers helpful? in the forum Living with Pulmonary Fibrosis: 50+ 2 months ago
We just purchased (for two apartments) two of these filters from National Allergy:
https://www.natlallergy.com/advanced-hepa-air-purifier.htmlIt’s a less expensive (store-brand, essentially) version of the Austin filter that an air quality inspector recommended for our…[Read more]
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Jeffrey Carver replied to the topic Heal scar tissue – Is it possible? 2nd zoom call in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months ago
I did not see a Dropbox link to the recording of the session. Could that be put up here for all to see, please? Thanks.
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Jeffrey Carver replied to the topic Esbriet and coughing in the forum Esbriet (Pirfenidone) 3 months, 3 weeks ago
I have a similar cough. It’s the same now as it was before I started Esbriet about 2 months ago. It has improved a little since I got serious about following at least one of the things they tell you about reflux: I no longer eat within a couple of hours before going to bed. (Dang.) I also notice that I’m more likely to start coughing if I’m off…[Read more]
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Jeffrey Carver replied to the topic Leaving the house on 4LPM oxygen? in the forum Diagnosis Information and General Questions 3 months, 3 weeks ago
My own solution doesn’t seem to have been mentioned. I do have an Inogen 5, and like others, I quickly learned that it was not enough for active outings such as walking the dogs. I’m generally at 4 LPM at home when active, and settings of 4, or even 5 or 6, on the Inogen are not the same. The numeric settings on the portable concentrators are NOT…[Read more]
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Jeffrey Carver became a registered member 3 months, 3 weeks ago
A belated welcome to the PF forums Jeffrey, we’re glad you found us.