Pulmonary Fibrosis News Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Jeffrey Carver

Home Members Jeffrey Carver
show less show more
Profile picture of Jeffrey Carver

@jeffc49

  • Activity
  • Profile
  • Friends 0
  • Groups 0
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Groups
  • Profile picture of Jeffrey Carver

    Jeffrey Carver replied to the topic Leaving the house on 4LPM oxygen? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 weeks, 4 days ago

    Yes, I am on a home-fill system provided by the company that supplies my big concentrator. It works quite well. I have a small tank, good for about an hour at pulse-5, and a larger tank that lasts a good bit longer. Either one can go in a regular backpack, with some bubble wrap jammed around it to hold it steady. It doesn’t entirely replace the…[Read more]

  • Profile picture of Jeffrey Carver

    Jeffrey Carver replied to the topic Leaving the house on 4LPM oxygen? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 weeks, 4 days ago

    >> Inogen One G5 portable concentrator that goes to 5 liters on demand

    Again, that’s not really 5 liters. It’s just setting 5, and the actual amount delivered is considerably less than 5 L. It’s very confusing, and I wish they had come up with a better way of measuring these things. Even my pulmonologist was confused by it.

     

  • Profile picture of Jeffrey Carver

    Jeffrey Carver replied to the topic Leaving the house on 4LPM oxygen? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 weeks ago

    Randy, I wonder if your Inogen is malfunctioning. Have you seen any alerts on the screen? I recently had to replace the sieve columns in mine. (Very easy to do. I bought mine directly from Inogen.) There’s a very distinctive icon that appears on the screen when the columns are spent.

    Do you see the little green light flash every time you take a breath?

  • Profile picture of Jeffrey Carver

    Jeffrey Carver replied to the topic Leaving the house on 4LPM oxygen? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 month ago

    Your Inogen goes to #6. That is not the same as 6LPM, and in fact is quite a bit less, because it is pulsed delivery. (I have the same model.) There is no direct correlation between LPM and the numbers you see on pulsed devices. They are different scales.

    My own experience suggests that 5 on my Inogen does not give me as much boost as 4LPM on my…[Read more]

  • Profile picture of Jeffrey Carver

    Jeffrey Carver replied to the topic Starting out with Esbriet in the forum Esbriet (Pirfenidone) 1 month, 2 weeks ago

    I’m 73 and have been on Pirfenidone (Esbriet) for a few months now. I had trouble at first, mainly with fatigue and my sleep being messed up. I paused at 6 tabs/day, cut back to 4 for a couple of weeks, and then started increasing. It went better the second time, and I’m now taking the full dose of 9/day. I still get some fatigue, but overall it’s…[Read more]

  • Profile picture of Jeffrey Carver

    Jeffrey Carver replied to the topic Are air purifiers helpful? in the forum Living with Pulmonary Fibrosis: 50+ 2 months ago

    We just purchased (for two apartments) two of these filters from National Allergy:
    https://www.natlallergy.com/advanced-hepa-air-purifier.html

    It’s a less expensive (store-brand, essentially) version of the Austin filter that an air quality inspector recommended for our…[Read more]

  • Profile picture of Jeffrey Carver

    Jeffrey Carver replied to the topic Heal scar tissue – Is it possible? 2nd zoom call in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months ago

    I did not see a Dropbox link to the recording of the session. Could that be put up here for all to see, please? Thanks.

     

  • Profile picture of Jeffrey Carver

    Jeffrey Carver replied to the topic Esbriet and coughing in the forum Esbriet (Pirfenidone) 3 months, 3 weeks ago

    I have a similar cough. It’s the same now as it was before I started Esbriet about 2 months ago. It has improved a little since I got serious about following at least one of the things they tell you about reflux: I no longer eat within a couple of hours before going to bed. (Dang.) I also notice that I’m more likely to start coughing if I’m off…[Read more]

  • Profile picture of Jeffrey Carver

    Jeffrey Carver replied to the topic Leaving the house on 4LPM oxygen? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 months, 3 weeks ago

    My own solution doesn’t seem to have been mentioned. I do have an Inogen 5, and like others, I quickly learned that it was not enough for active outings such as walking the dogs. I’m generally at 4 LPM at home when active, and settings of 4, or even 5 or 6, on the Inogen are not the same. The numeric settings on the portable concentrators are NOT…[Read more]

  • Profile picture of Jeffrey Carver

    Jeffrey Carver became a registered member 3 months, 3 weeks ago

    • Profile picture of Christie Patient
      Christie Patient replied 3 months, 1 week ago

      A belated welcome to the PF forums Jeffrey, we’re glad you found us.

Profile Photo Brendan

Login

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages

Who’s Online

There are no users currently online

Newest Topics

  • Bird fancier’s lung by Hanne Swenson
  • The Importance of Patient-Centered Care by Charlene Marshall
  • How Can Others Support Those Living with PF? by Charlene Marshall
  • Any Poetry Lovers Out There? by Christie Patient
  • Who Has Inspired You? by Charlene Marshall

Recent Replies

  • The Importance of Patient-Centered Care
  • Covid causing pulmonary fibrosis
  • Any Poetry Lovers Out There?
  • Covid causing pulmonary fibrosis
  • Love Letters

Members

Newest | Active | Popular
  • Profile picture of Margaret
    Margaret
    Active 3 hours, 19 minutes ago
  • Profile picture of Mike Montague
    Mike Montague
    Active 3 hours, 53 minutes ago
  • Profile picture of Stu
    Stu
    Active 7 hours, 38 minutes ago
  • Profile picture of Carmen Camacho
    Carmen Camacho
    Active 8 hours, 22 minutes ago
  • Profile picture of Denise Stogdill
    Denise Stogdill
    Active 9 hours, 59 minutes ago

Forums

  • Coronavirus (COVID-19) and Pulmonary Fibrosis
  • Healthy Recipe Sharing
  • Hobbies & Projects
  • Polls & Quizzes
  • Using Our Forums
  • Flash Briefings & Podcasts
  • Join the Discussion: Welcome to all PF/IPF Patients
  • 30 Days of PF
  • In Loving Memory
  • Wednesday Wins
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Caregivers and Spouses
  • Employment & Pulmonary Fibrosis
  • Clinical Trials
  • Research and Development
  • Esbriet (Pirfenidone)
  • Ofev (Nintedanib)
  • Canadians Living with Pulmonary Fibrosis
  • Pulmonary Fibrosis Awareness & Advocacy
  • PF Caregivers, Family Members & Spouses
  • Living with Pulmonary Fibrosis: 50+
  • Pre/Post Lung Transplant
  • Young Adults Living with Pulmonary Fibrosis (40 & Under)
  • Upcoming Medical Appointments: Q&As
  • Most popular topics
  • Topics with no replies


Pulmonary Fibrosis News Today

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy

Disclaimer

Pulmonary Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2023 All rights reserved.

©[current-year] KLEO Template a premium and multipurpose theme from Seventh Queen