@jhaynes
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Janet Haynes replied to the topic Life span in the forum Diagnosis Information and General Questions 2 years, 3 months ago
Welcome Pam to the forum. My husband was diagnosed 4 years ago and we read with dismay the 3-5 life span. He has been taking Esbriet since being diagnosed, sees his pulmonologist every 6 months and is in great shape – no oxygen. I too wish that the outdated information would be remove especially since there is now medication that works to sl…[Read more]
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Janet Haynes replied to the topic how long can you take Esbriet? in the forum Esbriet (Pirfenidone) 2 years, 11 months ago
Thank you, Mark. We feel very blessed that he is still in relatively good health.
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Janet Haynes replied to the topic how long can you take Esbriet? in the forum Esbriet (Pirfenidone) 2 years, 11 months ago
My husband was diagnosed with IPF in September 2016, was determined by his pulmonologist in November that he was a candidate for Esbriet, and started Esbriet in January 2017. He’s been taking it ever since. He has experienced some (minor) sleep issues and thinks the side effects may be because of medication that he is taking for IPF and h…[Read more]
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Janet Haynes became a registered member 2 years, 11 months ago
Hello Janet, thank you for joining your pulmonary fibrosis forum. Janet I read your bio. Please ask your physician to check your husband for achalasia. I had the same problem. Welcome!