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Jim replied to the topic Life span in the forum Diagnosis Information and General Questions 2 years, 2 months ago
Three to five year prognosis seems pretty accurate in my case.
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Jim replied to the topic Has anyone stopped taking Esbriet? in the forum Esbriet (Pirfenidone) 2 years, 4 months ago
I have been taking Espiret for exactly two years without side effects, which was not the case when I took Ofev previously. However, I have seen no evidence that either drug actually slowed the progression of my IPF. I am right on schedule per the initial prognosis given me January 2017, ie a 3-5 year life expectancy.
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Jim replied to the topic Consuming a Healthy Diet with IPF in the forum Healthy Recipe Sharing 2 years, 4 months ago
One word for the food-averse: smoothies.
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Jim replied to the topic STALL Technique for Combating Breathlessness in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years ago
Taking deep breathes and exhaling through pursed lips helps me mitigate breathlessness.
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Jim replied to the topic Coronavirus Being Breathed In Through POC in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 3 years ago
Interesting and to me a very relevant question. I will be flying cross-country this weekend relying on a face mask and my POC for safety. It had not occurred to me that using the POC might do more harm than good while I am in the airport or confined to the airplane’s cabin.
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Jim replied to the topic Gabapentin For IPF-Related Cough? in the forum Diagnosis Information and General Questions 3 years, 7 months ago
Prescribed for my dry cough. Seems quite effective.
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Jim replied to the topic Do You Identify With Being 'Disabled'? in the forum Diagnosis Information and General Questions 3 years, 7 months ago
I do not self-identify as disabled but I did obtain a handicap parking placard that I use only when I cannot find a space within a reasonable (for me) walking distance.
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Jim replied to the topic Starting Esbriet in the forum Esbriet (Pirfenidone) 3 years, 8 months ago
My IPF diagnosis dates from January 2017. I started Ofev 2 months later but developed intolerable side effects (gastro distress and fatigue) by March 2019. I then switched to Espiret. The side effects are minimal to this point other than considerably increased photosensitivity.
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Jim replied to the topic Low BMI Might Be a Risk Factor for Gastrointestinal Side Effects in IPF Patients on Ofev in the forum Flash Briefings & Podcasts 3 years, 8 months ago
That explains a few things!
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Jim replied to the topic Pulmonary Rehab May Improve Exercise Capacity and Quality of Life in IPF Patients in the forum Flash Briefings & Podcasts 3 years, 11 months ago
Male, age 67, IPF diagnosis 1/17. I exercise because I always have. Currently 2 hours of supervised pulmonary rehab once weekly, including treadmill, stationary bike, and Stairmaster plus dumbbells & body weight, all while on an O2 cylinder. In addition, daily exercise bike and free weight sessions at home using an O2 concentrator.
For me, the…[Read more]
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Jim became a registered member 3 years, 11 months ago
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Jim's profile was updated 3 years, 11 months ago
Welcome to the PF forums Jim. Thanks for joining us!