| Short Bio |
I was diagnosed with IPF in July 2021. Went onto Ofev in October 2022, but got off of it after 4 months due to severe stomach cramps and diarrhea. I am now in my third month of taking Esbriet. I had a rash due to photosensitivity in the early going, but I seem to have moved past it now. Otherwise I’ve had no adverse effects that I’m aware of.
I just finished my 1st week in a phase 3 trial of Tyvaso at National Jewish Health in Denver. At this juncture I’m on 3 puffs, 4 times/day. I’m advised that the dosage will be increased as I movd forward in the yearlong study. Of course I don’t know if I’m on the drug or a placebo. The only side effect to date is extreme tiredness at the end of the day, but I suppose that could merely be a psychological reaction.
In any case, more later.
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| How long have you or the person that you are caring for had PF? |
2 years
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