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Joan E. Lynch replied to the topic Do you take OFEV? Take our poll! in the forum Polls & Quizzes 3 years, 6 months ago
No
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Joan E. Lynch replied to the topic Gabapentin For IPF-Related Cough? in the forum Diagnosis Information and General Questions 3 years, 7 months ago
I have been on Gabapentin for almost 2 weeks and it definitely helped my cough. I hope it continues to do so. I do have a mucus cough once in a while. But all in all I am feeling really good right now in spite of my old age which is also terminal.
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Joan E. Lynch replied to the topic Pulmonary Fibrosis Secondary to Sarcoidosis in the forum Young Adults Living with Pulmonary Fibrosis (40 & Under) 3 years, 7 months ago
Charlene, I have no idea if the sarcoidosis caused my husband’s heart problem. I really don’t think so as he had a coronary bypass quite a while before the sarcoidosis diagnosis. But who knows if it did, the doctors never told us that. I do know that he almost died from too much calcium in his blood and was monitored closely for a long tim…[Read more]
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Joan E. Lynch replied to the topic Pulmonary Fibrosis Secondary to Sarcoidosis in the forum Young Adults Living with Pulmonary Fibrosis (40 & Under) 3 years, 7 months ago
My husband got Sarcoidosis after major surgery on lymph nodes in his chest as a prevention measure after testicular cancer. They diagnosed his symptoms later as too much calcium in the blood and was treated with prednisone for several years. Pulmonary Fibrosis was never mentioned. He did not have trouble breathing. He passed away from heart…[Read more]
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Joan E. Lynch replied to the topic Clearing Throat in the forum Diagnosis Information and General Questions 3 years, 7 months ago
I have had a nasal drip on and off for years. Mostly on now. I use Flonase every morning in my nose as I think I also have allergies. I lost my taste a while back but the Flonase helped that. I also have a problem with my voice when trying to talk it is most annoying I agree. I started on Gabapentin a week ago and I am feeling much bett…[Read more]
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Joan E. Lynch replied to the topic Gabapentin For IPF-Related Cough? in the forum Diagnosis Information and General Questions 3 years, 7 months ago
Hi Charlene, My doctor prescribed Gabapentin went I saw him on Friday. It is 300 mg a day (100 mg 3x per day). I felt a little dizzy after the second dose. I will have to give it more time to see if it helps my cough. I would like to know what off-label means also…………….J
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Joan E. Lynch replied to the topic Gabapentin For IPF-Related Cough? in the forum Diagnosis Information and General Questions 3 years, 7 months ago
I was on gabapentin for several years due to nerve pain from shingles while I was living in MA. Went off when I felt better from the nerve pain. My dry cough started some time after that. I have since moved to Florida. I am seeing my pulmonologist on Friday and will ask him about putting me on. Will let you know how it goes.
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Joan E. Lynch replied to the topic Do You Identify With Being 'Disabled'? in the forum Diagnosis Information and General Questions 3 years, 8 months ago
I do not think of myself as being disabled. However, my daughter-in-law said I should get a handicap placard. When I am with my family, they let me off at the door usually. When I am alone I try to park close. I am 87 so am battling old age as well as pulmonary fibrosis. I was formally diagnosed in November 2018 but back in 2014 I was havi…[Read more]
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Joan E. Lynch became a registered member 3 years, 10 months ago
Hello Joan, welcome to your pulmonary fibrosis forum. Thank you for joining.