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Biography
Name
Joan Jones
Nickname
joan-jones
Year of Birth
1962
Gender
Female
Location
Lake Katrine
Relationship
Caregiver
Short Bio
Caring for my husband who was diagnosed in March 2019 and is now end stage of disease
Type of Diagnosis
PF of known aetiology
Treatment / Medical Facility
Was evaluated at NY PRESBYTERIAN ILD clinic and transplant
Current medication regimen
None but ofev
Lung transplantation status
eligible
Supplemental Oxygen
yes
Best advice for PF symptom management
Have no advice
Are you currently taking an anti-fibrotic medication?
yes
How did you find us?
PF News Website
How long have you or the person that you are caring for had PF?
20 months
Privacy Policy and Terms of Use
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