@john-beaton
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John Beaton posted an update 3 years, 5 months ago
My doctor has decided that I should try Esbriet to see if I can tolerate it. He says he does not usually recommend it for anyone my age (86) , but he thinks I am in better health than most. I am hoping to hear from others who are using Esbriet and can tell me about the side effects and how they can be handled.
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John Beaton posted an update 3 years, 5 months ago
My late wife had pf too, but hers was brought on by acid reflux and smoking. During the last year of her life her pulmonologist prescribed an antibiotic three times a week. It helped a great deal with her cough.
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John Beaton posted an update 3 years, 7 months ago
I am wondering if anyone with IPF has tried using Aerosure for mucus removal? If so, I would like to know how well it works and if you benefited from its use.
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John Beaton posted an update 3 years, 8 months ago
My ipf has progressed some; the pulmonologist assures me that it progresses more slowly in older people. I see him again in January. I still feel well as long as I do not exert myself. Coughing is not too big a problem. On the advice of my GP I tried marijuana for a couple of months. I didn’t think it helped, so I quit it. I don’t see the…[Read more]
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Hi John,
Thanks so much for posting this update and so sorry for my delay in responding. Unless someone posts in a forum, I don’t get a notification about it so I almost missed replying but so glad I didn’t as I appreciate your sharing your experience with us!
I am really glad your symptoms of IPF are manageable right now as long as you don’t…[Read more]
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John Beaton joined the group
Research and Development 4 years, 1 month ago -
John Beaton posted a new activity comment 4 years, 1 month ago
I have no stress around the house and I sleep well, but I do have shortness of breath during exertion. Since I am 85 and in good health otherwise, my specialist does not recommend medication at this time because of side effects. I have been reading everything I can on the internet and I see that there are medications recommended there. My wife…[Read more]
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John Beaton posted an update 4 years, 1 month ago
I began noticing my shortness of beat last summer. When working in my garden, I had to sit down every few minutes to catch my breath. Since then I have seen a specialist and been diagnosed with IPF. I had a CAT Scan and a breathing lest as well as a chest x-ray. They have scheduled another breathing test in 4 months to see how it is progressing.
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I have no stress around the house and I sleep well, but I do have shortness of breath during exertion. Since I am 85 and in good health otherwise, my specialist does not recommend medication at this time because of side effects. I have been reading everything I can on the internet and I see that there are medications recommended there. My wife…[Read more]
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John Beaton became a registered member 4 years, 1 month ago
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Hi John, welcome to the PF forums. Thanks for joining us!
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