@johnsharman
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John Sharman replied to the topic 5 Fears About Unemployment for Pulmonary Fibrosis Patients in the forum Employment & Pulmonary Fibrosis 2 months ago
This is an excellent synopsis around Pulmonary Fibrosis.
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John Sharman replied to the topic Ofev and Plaquenil in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 months ago
<p style=”text-align: center;”>I too have Scleroderma based ILD. I was diagnosed 4 years ago with ILD and 7 years ago with Limited Scleroderma. I have been on Hydroxychloroquine for 6 years, CellCept for 4 and OFEV for 2. Due to a rapid decline in total lung capacity, I recently went off the CellCept and Hydroxychloroquine and started on R…[Read more]
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John Sharman started the topic Rituxamab Infusion Treatment in the forum Join the Discussion: Welcome to all PF/IPF Patients 5 months, 2 weeks ago
My Doctors are recommending this infusion treatment be cause I continue to lose lung capacity at an alarming rate. It is considered a high risk treatment option so I am looking to find someone who may have been down this path. I am already on the OFEV & CellCept plan.
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John Sharman became a registered member 5 months, 2 weeks ago
Welcome to the PF forums John, we’re glad you found us.