John Garner

Hello Everyone,

I have only been diagnosed with IPF for about a year. So far my symptoms have been mild. I am tired everyday and get winded easily. I am on Ofev. I wonder if others with this disease think like I do? I sometimes think I am making too big of a deal about it. I don’t tell everyone about it, mainly just my family and close friends. I…[Read more]

Dear Vishal, so sorry for your loss of your Dad. I am praying for you and your family. If you follow this forum you will hear about different people with IPF or about their loved ones and then all of a sudden you stop hearing about them. Thank you for sharing his story with us. I’m sure most of us with IPF have thought how would it be when our…[Read more]

P.S. After thinking about what I just said about taking my Ofev as close to 12 hours apart as possible, my just be in my head. I may just be one of the fortunate ones that have very little side affects from the Ofev. It’s all a little confusing.

Great topic! I was diagnosed with IPF in July of 2020. I have been on Ofev for 2 1/2 months with very little side affects. I think the reason I have minimal side affects is that I  take my pills as close to 12 hours apart as possible. When I was first diagnosed with IPF, I was pretty down after reading about the life span on the internet. But…[Read more]

Are there any of you that have IPF using a CPAP machine when you sleep? If yes, does it help or hinder you? I have been using a CPAP for about two years now and in fact, I think that is what damaged my lungs. They (University of Washington) can’t find anything specific. They said I have chronic hypersensitivity pneumonitis. My pulmonologist…[Read more]

Hello, I have only been diagnosed with IPF since last June. So far I only have mild symptoms. I been taking Ofev for about two months. Can anyone tell me on average when do people with IPF have to start taking oxygen? My O2 level is about 93% at rest. This forum is very helpful but sometimes discouraging to hear how some others are doing.

Hello, my name is John and this is the first time I’ve said anything on this forum. I have only been diagnosed with IPF for about seven months.  At first it was overwhelming and confusing.  I am getting more educated with my disease and have come to terms with it. I am on Ofev and know that it can’t be cured but I am not going to let this thing c…[Read more]

Hello Mark, I read the articles that you referred to and am wondering if for those of us that have IPF should eat all the foods these articles recommend? All of the foods sound like a healthy diet for anyone but I’m new to IPF, only being diagnosed six months and don’t exactly which foods are good for me. Thank You, John