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John Weitner replied to the topic WEI Institute Natural Care of Chronic Lung Diseases in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 weeks ago
No..I never ran anything I was taking with the pulmonologist.. They should have provided information about other useful things to take other than Ofev. Doctors tend to push pharma meds and dismiss natural remedies.
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John Weitner replied to the topic WEI Institute Natural Care of Chronic Lung Diseases in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 weeks ago
I did a 3 month trial of the Wei products shortly after I was diagnosed last August. For me it is impossible to say one way or the other if they had any benefit. In addition to OFEV, and medication for acid reflux, I was taking quite an assortment of other vitamins and supplements prescribed by my Naturopath. As well I started using a t…[Read more]
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John Weitner started the topic Getting the Vaccine in Ontario in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 1 month, 1 week ago
I’m in the Niagara Region and they are following the Ontario guidelines. I dont qualify for the 1st group getting the vaccine.
I’m not sure if I will qualify for the 2nd phase starting in March which is described as
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John Weitner replied to the topic COVID-19 and Me in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 2 months, 1 week ago
Mark, I’m happy to hear that you came through this without any damage to your body.
I’m very nervous about getting Covid. I spoke with my lung doctor a few weeks ago about Covid with those with IPF. He stated that my odds of dying doubled if I did get it, compared to another 67 year old with no underlying conditions.
I’ll be first in line to…[Read more]
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John Weitner replied to the topic Exercise Routine in the forum Diagnosis Information and General Questions 6 months ago
Hi Dawn..
Yes I do use some weights for the arms as well as strengthening my legs in the Yoga exercises.. So sorry to hear about your family..this sure suggests PF is hereditary.
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John Weitner replied to the topic Exercise Routine in the forum Diagnosis Information and General Questions 6 months ago
Hi Susan..
I use this one:
CAIRE® Hi Flow Stroller®
CAIRE’s Hi Flow Stroller offers continuous flow up to 15 LPM and is the perfect option for hospitals, long-term care facilities and ambulating oxygen users that require high flow rates. The CAIRE Hi Flow Stroller is housed in an attractive leather-finish soft case that is both attractive, dur…[Read more] -
John Weitner replied to the topic Exercise Routine in the forum Diagnosis Information and General Questions 6 months ago
My POC goes up to 15! and the O2 is gushing out. I’ll up the flow rate when exercising and see if I can raise my O2 level.
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John Weitner replied to the topic Exercise Routine in the forum Diagnosis Information and General Questions 6 months ago
Hi Suzanne
I do have supplemental O2 which I use while on the treadmill.. I have it set to output 3L/min and I still will drop to 77.. should I increase the flow rate ? or should I slow the treadmill speed down so the O2 level stays higher?
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John Weitner replied to the topic Ofev Users can Safely take Ofev on a Long Term Basis in the forum Ofev (Nintedanib) 6 months ago
Thanks for sharing this Mark – It is really assuring as I was concerned about long term use – especially on the liver.
I have only been on Ofev for 3 weeks so cant answer your question. So far, I only had diarrhea once, and as long as I eat a decent amount of food, I am tolerating it very well.
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John Weitner replied to the topic Exercise Routine in the forum Diagnosis Information and General Questions 6 months, 1 week ago
Hi Charlene..
thanks for the suggestion about a lung rehab program – there is a place not to far away that does offer personalized exercise programs – I will contact them.
This is the video I use for breathing and stretching – it was put together by the Irish Lung Fibrosis…[Read more]
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John Weitner started the topic Exercise Routine in the forum Diagnosis Information and General Questions 6 months, 1 week ago
Hi all,
I’m a new member having been diagnosed with IPF a few weeks ago. Prior to this, I was pretty inactive. I’m 67 and have been retired for 10 years. Since the diagnosis, I have changed my diet – lost 10 pounds with 30 more to go.
I have been exercising every day. My routine consists of 30 minutes of breathing exercises and stretching…[Read more]
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John Weitner replied to the topic Excessive cough during sleeping time in the forum Join the Discussion: Welcome to all PF/IPF Patients 6 months, 2 weeks ago
Hello Reshma,
I use a wedge pillow and it really helps. Around $40 Amazon..
I want to ask the group what causes the coughing? My doctor says it is from Acid Reflux. He gave me a med for it and I changed my diet and my coughing has dropped dramatically. I’m guessing that acid reflux is not the only thing that triggers the coughing ?…[Read more]
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John Weitner became a registered member 6 months, 3 weeks ago
Hello John, welcome to your pulmonary fibrosis forum. Thank you for joining.