Biography

Nickname

joe-murray
Gender

Male
Relationship

Patient
Short Bio

I was diagnosed with IPF in 2018 and am now on 5 lpm 24/7.  Retired but adjusting to new situations and staying with pulmonary therapy.  Needed to lose 100 to 110 lbs. for transplant evaluation/listing.  Have lost 56 lbs. In three months;0).
Best advice for PF symptom management

Use a humidifier with your in-home o2 concentrator and keep an eye on your POC if you use one!  They can be very finicky.
Are you currently taking an anti-fibrotic medication?

yes
How did you find us?

PF News Website
How long have you or the person that you are caring for had PF?

1 yr plus
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