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Joy Hoffmann replied to the topic Living with IPF vs When Diagnosed in the forum Living with Pulmonary Fibrosis: 50+ 2 months ago
April 2021
I know all patients progress with this disease and we are all progressing at different rates.
I guess in a way I am fortunate because I am 83 and was diagnosed one year ago
I have been on OFEV all that time
I have only shortness of breath on stairs and doing housework
I walk 3 miles each day
I am sad for those who are so young w…[Read more]
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Joy Hoffmann replied to the topic Burning feeling in chest in the forum Using Our Forums 2 months, 3 weeks ago
That is acid reflux probably.
It is very common with PF .
Talk to your Dr about it.
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Joy Hoffmann replied to the topic New to this forum and kind of confused in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months, 3 weeks ago
So who has Pulmonary hypertension!
I feel like death is just around the corner.I have both
IPF and PH
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Joy Hoffmann posted an update 2 months, 3 weeks ago
Fear
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Joy Hoffmann posted an update 4 months, 2 weeks ago
So far so good
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Thank you for sharing Joy!
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Joy Hoffmann replied to the topic Afraid of the unknown in the forum Diagnosis Information and General Questions 7 months, 3 weeks ago
I find staying positive and calm helps so much.
I will have my first breathing test since being diagnosed in March and have been on OLEV since that time with no side effects.
My tests are at the end of Nov and I am very nervous about it.I am a young 82 year old so pretty much have lived a wonderful long and healthy life. At this point all I c…[Read more] -
Joy Hoffmann replied to the topic EGCG Green Tea Extract in the forum Clinical Trials 8 months, 1 week ago
I have been taking 2 green tea extracts for about 3 months. Not sure if it helps or not.
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Joy Hoffmann posted a new activity comment 8 months, 1 week ago
Does Charlene have a different forum…?
If so I should say thank you Mark -
Joy Hoffmann posted an update 8 months, 1 week ago
First of all. Thank all you who contribute to this discussion.
What in uplifting experience.
I am very fortunate that I experience only shortness of breathe and not all the other symptoms that are discussed here.
I am 82.. very healthy until this IPF reared it’s ugly head.
Have been on OLEV since my March 2020 diagnosis with not ill effects.
I w…[Read more]-
Hello Joy, thank you for the kind words. I think it’s fantastic you are doing so well. I love it that you continue to remain active. Thank you again, Mark
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Joy Hoffmann posted a new activity comment 1 year ago
Thank you Mark….
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You are most welcome Joy!
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Joy Hoffmann posted an update 1 year ago
Will have breathe test on July 6.
Hopefully No progression-
Hello Joy, I’m thinking positive thoughts for you. Best wishes, Mark
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Joy Hoffmann became a registered member 1 year ago
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Hello Joy, welcome and thank you for joining your pulmonary fibrosis forum.
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Thank you Mark….
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You are most welcome Joy!
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Does Charlene have a different forum…?
If so I should say thank you Mark
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