Joy Hoffmann

I am going from 150 mg to 100 mg because of gas and diarrhea  Is the lower dosage just as effective as the higher dosage.

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This web site is great for people to vent.
I was diagnosed with IPf in April of 2020. My doctor immediately  prescribed OFEV. So Fay the diseases has not progressed. I walk everyday .Eat a high healthy diet.And the real positive is that I just started an 8 week PF rehab program. I have always been active and healthy so this shortness of breath…[Read more]

Oh another thing

i had a horrible 8 hours of stomach cramps and diarrhea after taking 150 of OFEV on a rather empty stomach.

only had a hamburger  and French toast that day

so everyone be sure you eat a good meal.

I usually eat more and then can tolerate the OFEV

Will be going to,Utah for 19 days and very concerned re heat and high altitude

any advice on how to cope with IPF?

April  2021

I know all patients progress with this disease and we are all progressing at different rates.

I guess in a way I am fortunate because I am 83 and was diagnosed  one year ago

I have been on OFEV all that time

I have only shortness of breath on stairs and doing housework

I walk 3 miles each day

I am sad for those who are so young w…[Read more]

That is acid reflux probably.

It is very common with PF .

Talk to your Dr about it.

So who has Pulmonary hypertension!
I feel like death is just around the corner.

I have both

IPF and PH

I find staying positive and calm helps so much.
I will have my first breathing test since being diagnosed in March and have been on OLEV since that time with no side effects.
My tests are at the end of Nov  and I am very nervous about it.I am a young  82 year old so pretty much have lived a wonderful long and healthy life. At this point all I c…[Read more]

I have been taking 2 green tea extracts for about 3 months. Not sure if it helps or not.