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joyous
Biography
Name | Joyce |
Nickname | joyous |
Last Name | Davis |
Year of Birth | 07/27/1940 |
Gender | Female |
Location | 63401 |
Relationship | Patient |
Short Bio | I am now 83 diagnosed through lung scans with IPF in 2017. Since then has been a rocky road. At first I was put on OFEV then Esbrient both of which I could not continue to take because of the side effects for me. Since nothing out there I utilized my training as a master herbalist and searched for supplements in herbs and homeopathy that would help with the coughing. For the Mucus coughing I utilize BHI Mucus. For the other coughs homeopathy Borion Drosera 30 that dissolves under the tongue and if really hard coughing used Dr.Christophers ANTSP an antispasmadic in a little water. . Went through lots of other products but settled on the Ridgecrest Clear Lungs Extra Strength and saw good benefits from it with very little progression until 2022. I did not have Covid but shortly after taking the series of Covid vaccines it showed advancing in the lungs and I had to start using oxygen from a home concentrator at 2 leiters at first and for most of the year. I found that a lot of my hard coughing was caused because my oxygen had dropped in the 80”s . Now that it has advanced some more and am now on 3 ½ leiters or 4 depending on if I am walking or sitting. I have been quite mobile by utilizing the small 113 leiter tanks that could be carried in a purse or a satchel and last about 3 hours so could still attend church and other activities. Now that I utilize more oxygen I find it necessary to watch the gauge closer and take extra tanks for back up. I tried the portable concentrator but it was heavier then the small tanks and made too much noise in runing and only had pulse not continuous feed. Also found out Medicare would not supplement the portable carry one and also needed tanks so just using the tanks. I came across research that was having good results with IPF utilizing Serracor-NK and and Serra RX from AST and Biomediclabs . I wish I had known about it when I was first diagnosed. I have been taking the therapeudic dosage for 5 weeks now so will take at least 10 weeks to see if it will help reduce the webbing in the lungs and give me better breathing ability. Also utilizing honey a teaspoon on waking and at bed time to see if it will help halt the mucus build up. Since nothing is out there to cure IPF I am for doing anything that would help with a better quality of life while LIVING with this disease. I will continue these supplements above I know this is a terminal disease and have a strong faith in the Lord Jesus knowing that each day is a blessing to breathe and get around. In this life we know we will have troubles but HE is there to lead us through and brings great peace to me on this journey. I am in hopes that something I have said in this post will help others as they take this venture living with IPF . |
Type of Diagnosis | IPF |
Supplemental Oxygen | yes |
Best advice for PF symptom management | I am now 83 diagnosed through lung scans with IPF in 2017. Since then has been a rocky road. At first I was put on OFEV then Esbrient both of which I could not continue to take because of the side effects for me. Since nothing out there I utilized my training as a master herbalist and searched for supplements in herbs and homeopathy that would help with the coughing. For the Mucus coughing I utilize BHI Mucus. For the other coughs homeopathy Borion Drosera 30 that dissolves under the tongue and if really hard coughing used Dr.Christophers ANTSP an antispasmadic in a little water. . Went through lots of other products but settled on the Ridgecrest Clear Lungs Extra Strength and saw good benefits from it with very little progression until 2022. I did not have Covid but shortly after taking the series of Covid vaccines it showed advancing in the lungs and I had to start using oxygen from a home concentrator at 2 leiters at first and for most of the year. I found that a lot of my hard coughing was caused because my oxygen had dropped in the 80”s . Now that it has advanced some more and am now on 3 ½ leiters or 4 depending on if I am walking or sitting. I have been quite mobile by utilizing the small 113 leiter tanks that could be carried in a purse or a satchel and last about 3 hours so could still attend church and other activities. Now that I utilize more oxygen I find it necessary to watch the gauge closer and take extra tanks for back up. I tried the portable concentrator but it was heavier then the small tanks and made too much noise in runing and only had pulse not continuous feed. Also found out Medicare would not supplement the portable carry one and also needed tanks so just using the tanks. I came across research that was having good results with IPF utilizing Serracor-NK and and Serra RX from AST and Biomediclabs . I wish I had known about it when I was first diagnosed. I have been taking the therapeudic dosage for 5 weeks now so will take at least 10 weeks to see if it will help reduce the webbing in the lungs and give me better breathing ability. Also utilizing honey a teaspoon on waking and at bed time to see if it will help halt the mucus build up. Since nothing is out there to cure IPF I am for doing anything that would help with a better quality of life while LIVING with this disease. I will continue these supplements above I know this is a terminal disease and have a strong faith in the Lord Jesus knowing that each day is a blessing to breathe and get around. In this life we know we will have troubles but HE is there to lead us through and brings great peace to me on this journey. I am in hopes that something I have said in this post will help others as they take this venture living with IPF . |
Are you currently taking an anti-fibrotic medication? | no |
How did you find us? | Other |
How long have you or the person that you are caring for had PF? | 7 years |
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