[JPocean77]

I was part of the clinical trial for Nerandomilast over the past 3 years. I was diagnosed with Familial Pulmonary Fibrosis (FPF) over 6yrs ago. I lost my mother and both my brothers to this disease. Unfortunately Ofev and Esbriet were not available at that time. I myself tried both of those drugs but I could not tolerate them. They made a mess of my stomach. I found out recently that during the double blind-study, I was on Nerandomilast from the very beginning. I was very lucky. I tolerated the drug extremely well. I had minor issues for the first two weeks but after that..nothing at all. I believe this drug is a game changer. I wish it was available for my family. I remain quite active, gym, hiking, biking, etc.. I definitely feel a difference in my breathing. When I’m working out it has slowed me down but I have yet to use oxygen. I know Nerandomilast is not a cure but it will for sure slow it down to a crawl. I feel blessed that this drug has come along and remain hopeful for the future. I wish everyone on their journey all the best.