Judith Stryker-McGill replied to the topic BI Cares patient assistance program in the forum Ofev (Nintedanib) 4 months, 4 weeks ago
Try The Assistance Fund (TAF)
Phone: (855) 845-3663
Monday – Friday, 8 a.m. – 7 p.m. ET
Judith Stryker-McGill replied to the topic Hiatus Hernia in the forum Diagnosis Information and General Questions 7 months ago
My hiatal hernia was found by CT during my work-up for PF. I started OFEV in September 2020. Within weeks I developed the usual side effects. About 3 months after starting OFEV, I developed abdominal pain. Liver function tests, gallbladder studies, EGD, and upper GI series were negative. I thought the pain might be due to the hiatal hernia and…[Read more]
Judith Stryker-McGill replied to the topic How does taking Prednisone help IPF patients in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 7 months ago
Have any of you who have taken prednisone (for any duration, dose or method) shown improvement on your PFTs in any of the measures? Thank you for sharing your experiences. I have so much regard for all of you!
Judith Stryker-McGill replied to the topic Vaccinated PF people and COVID 19 in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 1 year, 7 months ago
I have IPF and received the Pfizer vaccine in May and the booster in August. My husband, who does not have IPF and is not immunocompromised, received the vaccine in May and the booster in October. About nine days ago, he developed a dry persistent cough which lasted one day. Three days later I developed the cough, fever, aches, and fatigue. We…[Read more]
Judith Stryker-McGill replied to the topic Really struggling for a diagnosis. Looking support and answers in the forum Diagnosis Information and General Questions 1 year, 10 months ago
I feel badly for you, Mark. I am not a physician and cannot even suggest a diagnosis, but these are my thoughts. Have you been worked-up for auto-immune disorders (lupus, RA, etc)? Does the NHS cover genetic testing? As you know, you need to get the GERD under control. Elevate the head of your bed with a wedge or blocks under the bed’s leg…[Read more]
Judith Stryker-McGill became a registered member 2 years, 6 months ago
Hi Judith, we are happy to have you as a member of the pf forum. Welcome!