Judith Stryker-McGill

Try The Assistance Fund (TAF)

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My hiatal hernia was found by CT during my work-up for PF. I started OFEV in September 2020. Within weeks I developed the usual side effects. About 3 months after starting OFEV, I developed abdominal pain. Liver function tests, gallbladder studies, EGD, and upper GI series were negative. I thought the pain might be due to the hiatal hernia and…[Read more]

Hello everyone,
Have any of you who have taken prednisone (for any duration, dose or method) shown improvement on your PFTs in any of the measures? Thank you for sharing your experiences. I have so much regard for all of you!

I have IPF and received the Pfizer vaccine in May and the booster in August. My husband, who does not have IPF and is not immunocompromised, received the vaccine in May and the booster in October. About nine days ago, he developed a dry persistent cough which lasted one day. Three days later I developed the cough, fever, aches, and fatigue. We…[Read more]

I feel badly for you, Mark.  I am not a physician and cannot even suggest a diagnosis, but these are my thoughts. Have you been worked-up for auto-immune disorders (lupus, RA, etc)?  Does the NHS cover genetic testing?  As you know, you need to get the GERD under control.  Elevate the head of your bed with a wedge or blocks under the bed’s leg…[Read more]