JWE
Biography
Name | James |
Nickname | JWE |
Last Name | Eilert |
Year of Birth | 1942 |
Gender | Male |
Location | Oro Valley AZ |
Relationship | Patient |
Short Bio | diagnosed in 2018, but HCT in 2016 showed some scaring and “ground glass” & disregarded. Pulmonologist referred after 2018 scan. He diagnosed IPF in Jan, later he sent me off to have a wedge resection as he did not think he’d get meaningful results with a bronchoscopy. Dec surgery results showed that the flecks floating in my lungs was hypersensitivity pneumonitis. Began oxygen therapy at end of Sep 2022. Oxygen concentrator delivered then & using 2 LPM at night. This June that went to 4 LPM and tanks. I wound up with my first appointment last month with Banner University ILD Clinic and was evaluated (6 min walk) to needing 6 LPM. New 10 LPM concentrator – upstairs. Stairs are a challenge but I’m NOT moving. Using a connected 50 ft tubing when downstairs – and, that allows me to get into a bit of the backyard patio. Otherwise I generally tow around an E-tank when out. I include a backpack with a D-tank sometimes & spas a backup. |
Type of Diagnosis | PF of known aetiology |
Treatment / Medical Facility | Banner University (AZ – Tucson) ILD Clinic |
Current medication regimen | diltiazem 120g ER 1x/d; Eloquis 5mg 1xd, Prednisone 5mg 1x/d, Ofev 150mg 1 AM & PM, Trelegy Elipta 200/25 1x/AM, Primidone 5mg 2 AM & PM |
Lung transplantation status | ineligible |
Supplemental Oxygen | yes |
Are you currently taking an anti-fibrotic medication? | yes |
If yes, which anti-fibrotic medication are you on? | Ofev |
How did you find us? | |
How long have you or the person that you are caring for had PF? | 5 years |
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