Biography

Name

James

Nickname

JWE

Last Name

Eilert

Year of Birth

1942

Gender

Male

Location

Oro Valley AZ

Relationship

Patient

Short Bio

diagnosed in 2018, but HCT in 2016 showed some scaring and “ground glass” & disregarded.  Pulmonologist referred after 2018 scan. He diagnosed IPF in Jan, later he sent me off to have a wedge resection as he did not think he’d get meaningful results with a bronchoscopy.  Dec surgery results showed that the flecks floating in my lungs was hypersensitivity pneumonitis. Began oxygen therapy at end of Sep 2022. Oxygen concentrator delivered then & using 2 LPM at night. This June that went to 4 LPM and tanks.  I wound up with my first appointment last month with Banner University ILD Clinic and was evaluated (6 min walk) to needing 6 LPM. New 10 LPM concentrator – upstairs.  Stairs are a challenge but I’m NOT moving.  Using a connected 50 ft tubing when downstairs – and, that allows me to get into a bit of the backyard patio. Otherwise I generally tow around an E-tank when out. I include a backpack with a D-tank sometimes & spas a backup.

Type of Diagnosis

PF of known aetiology

Treatment / Medical Facility

Banner University (AZ – Tucson) ILD Clinic

Current medication regimen

diltiazem 120g ER 1x/d; Eloquis 5mg 1xd, Prednisone 5mg 1x/d, Ofev 150mg 1 AM & PM, Trelegy Elipta 200/25 1x/AM, Primidone 5mg 2 AM & PM

Lung transplantation status

ineligible

Supplemental Oxygen

yes

Are you currently taking an anti-fibrotic medication?

yes

If yes, which anti-fibrotic medication are you on?

Ofev

How did you find us?

Facebook

How long have you or the person that you are caring for had PF?

5 years

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