Thank you, Jimbo. I have used a neti pot in the past, and I will try it again. Thanks so much for responding.

 

 

Judy, thank you so much for responding. I spoke with a pharmacist today about this problem, and that’s exactly what he recommended. I really appreciate hearing from you that it works for you. I will get it prescribed soon and hope that it does the trick.

I know this is an older thread, but I’ve started to experience the constantly runny nose due to using oxygen 24/7. It’s really, really annoying and embarrassing, too. Just wondering if anyone ever tries things the OTC Claritin or Zyrtec to dry things up, even if it isn’t due to allergies??

 

Oh, I confess that this just makes me want to crawl into the back of a closet somewhere. 🙁

Sorry, but the thought of being even more confined is REALLY discouraging.

Thanks, @steve-dragoo. I’ll email Andy with my questions.

 

@steve-dragoo I have one other question for now. I’d like a better understanding of what the chart for programmable lasers is recommending for a protocol before I start calling places around here to see if anyone will do this for me. If one was using that chart, would they be using all of those settings that are listed, from ‘capillary… Read more

Thanks to Steve and Charlene and Dr Hall and John for responding! Much appreciated. @drandyhall this is what I can tell you. When you go to the protocol on your summit website, it directs you to ‘download and print’ down at the bottom. When I did that, it converted it to a pdf, and there’s info missing on the protocol page in the pdf. The chart… Read more

Thanks, Charlene!

 

Hello, all. I’m finally considering pursuing laser therapy. My pulmonologist has said that he would read Andy’s protocol, and last night I downloaded it. Question, though: when you look at the protocol online, you get a chart for programmable lasers and some other info under the protocol section, but when you download it as a pdf, that… Read more

Hi, Charlene,

First of all, I’m very sorry to hear that you’ve developed PAH as a result of IPF. From my own experience, I find that it’s emotionally pretty challenging to hear yet another diagnosis on top of the first one. Each time that happens for me, I have to find my way through on so many levels, and it’s not easy.

I, too, have… Read more

@johnstyles

Thank you for the link to the Egyptian study!

Kate

@johnstyles  @drandyhall

John, you referred to acupuncture points being in an Egyptian study. Can you tell me how to get to that?

thanks,

Kate

Charlene, thank you so much for raising this issue. I’ve been bothered by the ‘fight’ and ‘warrior’ and ‘battle’ language for as long as I’ve been on the various online support groups. I do understand that it works for other people, but it doesn’t work for me at all. I think that I HAVE been fighting my illness for far too long, and in many… Read more

Thanks, Robin!

Robin,

Could I ask about how many things were tested for in the HP screening blood test that you had at JH?

thanks,

Kate

Hi, Lynn,

I was diagnosed with fibrotic chronic HP in 2012 based on the results from a lung biopsy done here in Madison, WI, and then the sample was sent to Mayo for confirmation. I had some blood work done to identify an antigen, but it was all ‘unrevealing’. With hindsight, what I would have done differently at the time was to actually go… Read more

Mary, I’m very curious about your reference to Aleve. Did your doc think the Aleve had been a player in your PF? I haven’t heard of that before.

Charlene, I don’t know if getting rid of the down items has helped or not. Not that I can tell in any discernible way, but exposure to birds and feathers is the most commonly identified cause of HP,… Read more

I’m just getting caught up on this discussion. Thanks to everyone who’s part of it so far, and especially thanks to Robin for sharing your report and experience with having your house tested. Just a few comments for now…

Ellen, I think it’s interesting that your pulmonologist would have recommended moving to new construction. My lungs… Read more

Robin, I would also really appreciate seeing the report from the industrial engineer if you’d also be comfortable emailing it to me. I was diagnosed with HP with fibrosis in 2012, and it has slowly progressed. I’ve never had my house tested, tho’ I’ve considered moving more than once. It simply hasn’t worked out to do that. I wonder how you… Read more

Thank you very much for this discussion, and thanks for all of the links. All are much appreciated, and I’ll hope to look into them more this weekend.