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    • #12530

      Recently a few members of this forum, and our other social media platforms such as Facebook, have been asking about how to stop the constant runny nose that can sometimes be associated with using supplemental oxygen. This can certainly be an unpleasant side effect for many patients living with pulmonary fibrosis (PF), although a necessity when we rely on using supplemental oxygen to breathe.

      If you experience this as a patient living with PF, do you have any tips & tricks on how to help stop a constant runny nose while using supplemental oxygen?

      One kind member of our forums took the time to share a tip that she received from another PF warrior that seemed to help with this side effect. She mentioned using a cannula with shorter and wider prongs. More specifically, she said that the Salter Labs ref. 1600-7 with 7ft tubing was helpful in stopping the constantly runny nose she had about 80% of the time.

      I’m so thankful for all the kind support that takes place on these forums, and would love to hear from you if you have any additional tips and tricks that has helped reduce or eliminate this unpleasant side effect of using supplemental oxygen.

      Thanks in advance for sharing!
      Charlene.

    • #12563
      Jay Turbes-s
      Participant

      We use the Salter “high-flow” (1600HF-7), but not because it reduces runniness but because it has proven quieter at night running 6L/min. Again, anecdotal. There’s still runniness, and I’d suspect anyone with the concentrator’s optional in-line humidifier flask would have the runniness problem as well.  We tried it for O2 that was drying out the nasal area but it just got messy so we stopped it. Even with the high-flow cannula, morning runniness is pretty heavy and aggravates coughing.  During the day, things are pretty good.

    • #12564

      Hi Jay,

      Thanks so much for taking the time to contribute your experience to this thread! I am sure it will help others who struggle with nighttime noise, as well as runniness from their current cannulas. Some people have mentioned that sleeping on a wedge pillow, where their shoulders and upper back are propped up and they said this helped reduce coughing in the morning. I’m not sure if that was due to a reduction in runniness as well though, but something to consider if it is a struggle for you. I haven’t done this yet, but it is on my “to-do” list to look into a proper foam wedge to support a more up-right position when sleeping, even if only to reduce the cough.

      Thanks again and take care,
      Charlene.

    • #22673
      Patricia Williams
      Participant

      Thank you for tips on the runny nose issue. It is driving me nuts. I recently had to buy a new mattress so I bought an electric bed (for down the road, way down I hope) and I am going to try that tonight. God bless us all. Charlene, I hope you are doing better. I have not checked in for awhile.

    • #22728

      @prwillie

      Hi Patricia,

      So sorry to hear of your struggles with the runny nose – this is awful, especially when you’re dealing with an oxygen cannula as well. Did the new mattress help at all? Hopefully you’ve given it a try and you feel a little better. Thank you for writing and for your kind words re: my recovery. It is slow, but going okay. I learnt the hard way this winter how detrimental catching a cold/flu can be for those of us with IPF. I start an intensive rehab program next Monday in hopes of trying to recover some of my lost lung function. Thanks for asking about me, and I also hope you’re doing okay….
      Charlene.

    • #22746
      Donna Murray
      Participant

      My sister Marsha is the one with IPF; I use supplemental oxygen (especially at night) for COPD.  I have had a terrible problem with runny nose, being able to go through an entire box of tissues in one day.  My pulmonologist prescribed a nasal spray for me, Azelastine HCL 0.1%.  It seems to help.

    • #22753

      Hi Donna,

      Nice to hear from you again! I’m so glad to hear the nasal spray seems to be effective to stop the runny nose, though sorry you have to deal with that. I know how awful it can be, especially with nasal cannulas in! I wonder if an elevated bed, similar to what Patricia wrote about, might help you? Maybe something to consider trying even with pillows for now. Goodluck with finding some relief. Thanks for writing!
      Charlene.

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