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Ron Johnson

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@ronjohnson

@drandyhall Andy, I have begun my laser therapy (6 sessions). The chiropractor is one you recommended. Thank you. He uses a K-Laser, Class 4, but does not get insurance coverage. I am also pursuing physical therapy, which is also helping. The physical therapy facility has a Lightforce (LifeCure LCT-1000), Class 4 and has the ability to use […] View
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    Ron Johnson replied to the topic Stopping a Runny Nose When Using Supplemental Oxygen in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 1 month ago

    I was going to mention the same prescription as I just started it a few days ago. Previously my nose would start running as soon as I put on the cannula during the day. With this spray the problem has improved substantially with almost no nasal flow, even when eating.

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    Ron Johnson replied to the topic Stem Cell Procedure for IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 4 months ago

    I was hoping stem cell would an answer or least have a high probability to make it worth trying. From what I have seen, the risk is too high as of this time. Hoping research will yield a solution.

  • Profile picture of Dennis Broetzman

    Dennis Broetzman and Profile picture of Ron JohnsonRon Johnson are now friends 1 year, 4 months ago

  • Profile picture of Ron Johnson

    Ron Johnson replied to the topic Stem Cell Procedure for IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 4 months ago

    A statement from the Pulmonary Fibrosis Foundation:

    https://www.medscape.com/viewarticle/910584

  • Profile picture of Ron Johnson

    Ron Johnson replied to the topic Recent Improvements and side benefits in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 6 months ago

    Lnour,

    You are correct. My error. It is FVC that I am comparing. Sorry for the confusion. The DLCO was identical in the two comparison PFTs.

    Regards, Ron

  • Profile picture of Ron Johnson

    Ron Johnson replied to the topic Recent Improvements and side benefits in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 6 months ago

    Hope it helps you Steve!

  • Profile picture of Ron Johnson

    Ron Johnson replied to the topic Recent Improvements and side benefits in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 6 months ago

    Tamara,

    The combination is on the WEI website under Respiratory. It includes Soup A, Soup B, and LC Balancer. Take three times a day. I hope it helps others as much or more than it has helped me.
    Regards, Ron

  • Profile picture of Ron Johnson

    Ron Johnson started the topic Recent Improvements and side benefits in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 6 months ago

    I started the WEI Supplements about 6 weeks ago and wanted to relay my experience. Seeing some on this forum with benefits, I thought I would try it even though it is expensive. I was diagnosed with IPF in October 2017 and now have lung function about 40% FEV1 and 30% DLCO from PFT 7 months ago. My energy level had decreased substantially and it…[Read more]

  • Profile picture of Ron Johnson

    Ron Johnson replied to the topic New Forum: Laser Therapy Results. in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 8 months ago

    @drandyhall @steve-dragoo

    Dr. Hall, PFTs are quarterly.

    Steve, your prayers are much appreciated. God bless.

  • Profile picture of Ron Johnson

    Ron Johnson replied to the topic New Forum: Laser Therapy Results. in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 8 months ago

    Update to laser therapy results: @drandyhall

    Here are the actual numbers from my last two PFTs, before and after laser therapy to give a more accurate view:

    FVC           FEV1           DLCO

    1/9/19             1.97           1.73              9.46

    4/30/19         2.04          1.72              9.80

    These numbers indicate some improve…[Read more]

  • Profile picture of Ron Johnson

    Ron Johnson replied to the topic New Forum: Laser Therapy Results. in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 9 months ago

    @charlenemarshall

    Opps. Sorry, I did a copy /paste.

    I did want to add that my nausea is now gone.

  • Profile picture of Ron Johnson

    Ron Johnson replied to the topic New Forum: Laser Therapy Results. in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 9 months ago

    @charlenemarshall,

    Charlene,
    I started taking Essentialzymes 4 from Young Living when I was on Ofev 150 mg. It helped but not enough. I then moved to Ofev 100 mg which helped a lot more. I still had residual nausea at a very low level but still too much. My wife suggested Allerzyme which is another YL product. Both of these enzymes help the…[Read more]

  • Profile picture of Ron Johnson

    Ron Johnson replied to the topic New Forum: Laser Therapy Results. in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 9 months ago

    @drandyhall

    I have completed over 48 treatments of laser therapy. Below are the numbers for my two most recent PFTs, one before starting the laser and one after. I am also taking OFEV (100 mg), and multiple supplements for nausea control (successful).

    FEV1 % Pred    DLCO % Pred       FVC % Pred

    January 9, 2019                                  …[Read more]

  • Profile picture of Ron Johnson

    Ron Johnson and Profile picture of Andrew Hall DCAndrew Hall DC are now friends 3 years, 9 months ago

  • Profile picture of Ron Johnson

    Ron Johnson replied to the topic Photography in the forum Hobbies & Projects 3 years, 10 months ago

    Katie ( @katiebagshawe ) , There is a wealth of information on the Internet (Youtube, for example). As you move along you may want to consider using an application that allows you to do post processing to enhance your images. Examples are: “Photo”, if you use Apple computer, or Lightroom. You will eventually want to shoot in Raw format which…[Read more]

  • Profile picture of Ron Johnson

    Ron Johnson replied to the topic Laser Therapy Results in the forum Pulmonary Fibrosis Awareness & Advocacy 3 years, 10 months ago

    @shumita,

    See pulmonary fibrosis.org under Announcements regarding caution for stem cell therapy.

  • Profile picture of Ron Johnson

    Ron Johnson replied to the topic Wei Products Newsletter in the forum Pulmonary Fibrosis Awareness & Advocacy 3 years, 10 months ago

    I was taking Nexium for GERD, then after heart bypass was moved to Famotadine (OTC is Pepcid at 10mg vs prescription at 20 mg). My pulmonologist does not recommend proton pump type meds for this condition. I continue to have stomach issues, but they are likely caused by the OFEV I now take. I am moving from 150 mg to 100mg to see if that helps.

  • Profile picture of Ron Johnson

    Ron Johnson posted a new activity comment 3 years, 11 months ago

    Thanks, Charlene.

    View Conversation
  • Profile picture of Ron Johnson

    Ron Johnson posted an update 3 years, 11 months ago

    @drandyhall
    Andy,
    I have begun my laser therapy (6 sessions). The chiropractor is one you recommended. Thank you. He uses a K-Laser, Class 4, but does not get insurance coverage. I am also pursuing physical therapy, which is also helping. The physical therapy facility has a Lightforce (LifeCure LCT-1000), Class 4 and has the ability to use…[Read more]

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 3 years, 11 months ago

      So glad to hear this Ron! I just replied to your direct message about this for information from Andy but it looks like he might have replied to you before I did. So glad you’ve started the laser therapy, keep us posted on how it is going for you if you wouldn’t mind 🙂

      Take care
      Charlene.

      • Profile picture of Ron Johnson
        Ron Johnson replied 3 years, 11 months ago

        Thanks, Charlene.

  • Profile picture of Ron Johnson

    Ron Johnson replied to the topic Flying with IPF in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 years, 11 months ago

    Charlene @charlenemarshall

    Great discussion on flying. I needed that information and hope to fly from TX to CA in August. We may take a short trip before then to test the experience.

     

    Regrading Hawaii: Having been there 3 times here is my assessment: Maui is more populated but has the most diverse options for sightseeing: The coast along Maui…[Read more]

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