@ronjohnson
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Ron Johnson replied to the topic Stopping a Runny Nose When Using Supplemental Oxygen in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 1 month ago
I was going to mention the same prescription as I just started it a few days ago. Previously my nose would start running as soon as I put on the cannula during the day. With this spray the problem has improved substantially with almost no nasal flow, even when eating.
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Ron Johnson replied to the topic Stem Cell Procedure for IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 4 months ago
I was hoping stem cell would an answer or least have a high probability to make it worth trying. From what I have seen, the risk is too high as of this time. Hoping research will yield a solution.
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Dennis Broetzman and
Ron Johnson are now friends 1 year, 4 months ago
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Ron Johnson replied to the topic Stem Cell Procedure for IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 4 months ago
A statement from the Pulmonary Fibrosis Foundation:
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Ron Johnson replied to the topic Recent Improvements and side benefits in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 6 months ago
Lnour,
You are correct. My error. It is FVC that I am comparing. Sorry for the confusion. The DLCO was identical in the two comparison PFTs.
Regards, Ron
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Ron Johnson replied to the topic Recent Improvements and side benefits in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 6 months ago
Hope it helps you Steve!
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Ron Johnson replied to the topic Recent Improvements and side benefits in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 6 months ago
Tamara,
The combination is on the WEI website under Respiratory. It includes Soup A, Soup B, and LC Balancer. Take three times a day. I hope it helps others as much or more than it has helped me.
Regards, Ron -
Ron Johnson started the topic Recent Improvements and side benefits in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 6 months ago
I started the WEI Supplements about 6 weeks ago and wanted to relay my experience. Seeing some on this forum with benefits, I thought I would try it even though it is expensive. I was diagnosed with IPF in October 2017 and now have lung function about 40% FEV1 and 30% DLCO from PFT 7 months ago. My energy level had decreased substantially and it…[Read more]
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Ron Johnson replied to the topic New Forum: Laser Therapy Results. in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 8 months ago
Dr. Hall, PFTs are quarterly.
Steve, your prayers are much appreciated. God bless.
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Ron Johnson replied to the topic New Forum: Laser Therapy Results. in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 8 months ago
Update to laser therapy results: @drandyhall
Here are the actual numbers from my last two PFTs, before and after laser therapy to give a more accurate view:
FVC FEV1 DLCO
1/9/19 1.97 1.73 9.46
4/30/19 2.04 1.72 9.80
These numbers indicate some improve…[Read more]
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Ron Johnson replied to the topic New Forum: Laser Therapy Results. in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 9 months ago
@charlenemarshall
Opps. Sorry, I did a copy /paste.
I did want to add that my nausea is now gone.
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Ron Johnson replied to the topic New Forum: Laser Therapy Results. in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 9 months ago
@charlenemarshall,
Charlene,
I started taking Essentialzymes 4 from Young Living when I was on Ofev 150 mg. It helped but not enough. I then moved to Ofev 100 mg which helped a lot more. I still had residual nausea at a very low level but still too much. My wife suggested Allerzyme which is another YL product. Both of these enzymes help the…[Read more] -
Ron Johnson replied to the topic New Forum: Laser Therapy Results. in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 9 months ago
I have completed over 48 treatments of laser therapy. Below are the numbers for my two most recent PFTs, one before starting the laser and one after. I am also taking OFEV (100 mg), and multiple supplements for nausea control (successful).
FEV1 % Pred DLCO % Pred FVC % Pred
January 9, 2019 …[Read more]
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Ron Johnson and
Andrew Hall DC are now friends 3 years, 9 months ago
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Ron Johnson replied to the topic Photography in the forum Hobbies & Projects 3 years, 10 months ago
Katie ( @katiebagshawe ) , There is a wealth of information on the Internet (Youtube, for example). As you move along you may want to consider using an application that allows you to do post processing to enhance your images. Examples are: “Photo”, if you use Apple computer, or Lightroom. You will eventually want to shoot in Raw format which…[Read more]
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Ron Johnson replied to the topic Laser Therapy Results in the forum Pulmonary Fibrosis Awareness & Advocacy 3 years, 10 months ago
See pulmonary fibrosis.org under Announcements regarding caution for stem cell therapy.
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Ron Johnson replied to the topic Wei Products Newsletter in the forum Pulmonary Fibrosis Awareness & Advocacy 3 years, 10 months ago
I was taking Nexium for GERD, then after heart bypass was moved to Famotadine (OTC is Pepcid at 10mg vs prescription at 20 mg). My pulmonologist does not recommend proton pump type meds for this condition. I continue to have stomach issues, but they are likely caused by the OFEV I now take. I am moving from 150 mg to 100mg to see if that helps.
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Ron Johnson posted a new activity comment 3 years, 11 months ago
Thanks, Charlene.
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Ron Johnson posted an update 3 years, 11 months ago
@drandyhall
Andy,
I have begun my laser therapy (6 sessions). The chiropractor is one you recommended. Thank you. He uses a K-Laser, Class 4, but does not get insurance coverage. I am also pursuing physical therapy, which is also helping. The physical therapy facility has a Lightforce (LifeCure LCT-1000), Class 4 and has the ability to use…[Read more]-
So glad to hear this Ron! I just replied to your direct message about this for information from Andy but it looks like he might have replied to you before I did. So glad you’ve started the laser therapy, keep us posted on how it is going for you if you wouldn’t mind 🙂
Take care
Charlene.-
Thanks, Charlene.
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Ron Johnson replied to the topic Flying with IPF in the forum Diagnosis Information and General Questions 3 years, 11 months ago
Charlene @charlenemarshall
Great discussion on flying. I needed that information and hope to fly from TX to CA in August. We may take a short trip before then to test the experience.
Regrading Hawaii: Having been there 3 times here is my assessment: Maui is more populated but has the most diverse options for sightseeing: The coast along Maui…[Read more]
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