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@kathil
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Kathi started the topic Pleuroparenchymal Fibroelastosis (PPFE) and rare lung diseases in the forum Diagnosis Information and General Questions 2 years, 3 months ago
Hello!
I was diagnosed with Pleuroparenchymal Fibroelastosis (PPFE for short), it’s rare and difficult finding others with it, however I have found a small group. I was wondering for people who are diagnosed with disease where you go to find information on doctors who treat that disease? I know Google is a resource, but so much to weed through…[Read more]
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Kathi joined the group
Research and Development 3 years, 1 month ago -
Kathi became a registered member 3 years, 1 month ago
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Thanks for joining the PF forums Kathi. Welcome!
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