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Kathi replied to the topic Heal scar tissue – Is it possible? 2nd zoom call in the forum Join the Discussion: Welcome to all PF/IPF Patients 6 months ago
I didn’t get the PM with the link to the recording. I also see my PM to you didn’t go through. I cannot make sense of this forum somehow. If possible, please PM me the link to the recording. Thanks!
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Kathi replied to the topic Heal scar tissue – Is it possible? 2nd zoom call in the forum Join the Discussion: Welcome to all PF/IPF Patients 6 months ago
I sent a PM with my email address but I’m not sure you got it. I find this whole forum so cumbersome and not always sure my messages get sent. Can you let me know if you got my PM with my email address?
Thanks
Kathi
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Kathi replied to the topic Heal scar tissue – Is it possible? 2nd zoom call in the forum Join the Discussion: Welcome to all PF/IPF Patients 6 months, 1 week ago
I’d love to be at this Zoom but I’m having a house full of people and a big meal for our American Thanksgiving holiday. Will there be a video replay available? Thanks.
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Kathi replied to the topic Where do you live, receive care, and are you in a local support group? in the forum Polls & Quizzes 6 months, 1 week ago
I know it’s off topic, but I’d love to hear more about what you learned at your conference on food choices for health!
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Kathi replied to the topic Rolling cart in the forum Diagnosis Information and General Questions 9 months, 3 weeks ago
I heard someone once say they use a baby stroller for their oxygen. They fold up easily (some of them!) and hold a lot of tanks/POC and supplies. I have been looking for a stroller so I can put three tanks in it and go walking around the lake on nice weather days. I think it’s a brilliant idea!
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Kathi replied to the topic Pleuroparenchymal Fibroelastosis (PPFE) and rare lung diseases in the forum Diagnosis Information and General Questions 1 year, 4 months ago
There’s a FB group for “Pleuroparenchymal Fibroelastosis (PPFE) Support Group” that I hope PPFE patients feel helpful specific to PPFE.
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Kathi replied to the topic Prospective change of meds: OFEV to Perfenidone in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 4 months ago
Will the nebulizer form of OFEV be available to patients soon?
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Kathi started the topic Pleuroparenchymal Fibroelastosis (PPFE) and rare lung diseases in the forum Diagnosis Information and General Questions 3 years, 9 months ago
Hello!
I was diagnosed with Pleuroparenchymal Fibroelastosis (PPFE for short), it’s rare and difficult finding others with it, however I have found a small group. I was wondering for people who are diagnosed with disease where you go to find information on doctors who treat that disease? I know Google is a resource, but so much to weed through…[Read more]
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Kathi joined the group
Research and Development 4 years, 7 months ago
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Kathi became a registered member 4 years, 7 months ago