@kathil
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Kathi replied to the topic Pleuroparenchymal Fibroelastosis (PPFE) and rare lung diseases in the forum Diagnosis Information and General Questions 2 weeks ago
There’s a FB group for “Pleuroparenchymal Fibroelastosis (PPFE) Support Group” that I hope PPFE patients feel helpful specific to PPFE.
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Kathi replied to the topic Prospective change of meds: OFEV to Perfenidone in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 weeks ago
Will the nebulizer form of OFEV be available to patients soon?
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Kathi started the topic Pleuroparenchymal Fibroelastosis (PPFE) and rare lung diseases in the forum Diagnosis Information and General Questions 2 years, 5 months ago
Hello!
I was diagnosed with Pleuroparenchymal Fibroelastosis (PPFE for short), it’s rare and difficult finding others with it, however I have found a small group. I was wondering for people who are diagnosed with disease where you go to find information on doctors who treat that disease? I know Google is a resource, but so much to weed through…[Read more]
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Kathi joined the group
Research and Development 3 years, 3 months ago -
Kathi became a registered member 3 years, 3 months ago
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Thanks for joining the PF forums Kathi. Welcome!
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