• I didn’t realize that the humidity could do that & make one feel like something awful..I even went to urgent care.

  • Yes, I have heard of pineapple long ago for mucus & by a couple of Doctors also . I know people who use it drink it…eat it during allergy season. I myself can eat a half in the afternoon than the other half in the evening.

    It is really a wonder food for mucus. I have to find the info on it again & why & how it helps.

    I asked before does anyone…[Read more]

  • could someone tell me if this number morc RNA phone number is MORC RNA 1 586-273-2216 is related to this report I keep getting calls from this number & when I looked it up it had something to do with what (I think) you are talking about. monARC BioNetworksIt’s important yet cannot find info on it maybe someone out there knows something about…[Read more]

  • Kathleen Greco posted a new activity comment 4 months, 4 weeks ago

    Still waiting for a reply please!I had asked about Steve? having these free cards or something on that order to travel or for hotel rooms Steve who was talking about hotel rates some free? ^ other things but could not find more info …Thinking I might still be able to fly? haven’t discussed it with Dr.yet either. But would love a get-away rea…[Read more]

  • Kathleen Greco posted a new activity comment 5 months ago

    I had asked about Steve? having these free cards or something on that order to travel or for hotel rooms Steve who was talking about hotel rates some free? ^ other things but could not find more info …THinking I might still be able to fly? haven’t discussed it with Dr.yet either. But would love a get-away really & had asked for more info….do you…[Read more]

    • Still waiting for a reply please!I had asked about Steve? having these free cards or something on that order to travel or for hotel rooms Steve who was talking about hotel rates some free? ^ other things but could not find more info …Thinking I might still be able to fly? haven’t discussed it with Dr.yet either. But would love a get-away rea…[Read more]

  • Kathleen Greco posted an update 5 months ago

    I didn’t know where to edit letter below ..because I meant Shoulder in note not should and some years ago was not just replacement but KNEE replacement or please take a min & you can see what I meant ….I have noticed with these notes too I have to look twice to see what was meant (but there must be a edit click) also was very interested in…[Read more]

    • Hello Kathleen, it is nice to hear from you and would like to welcome you in your forum. I see you currently have a lot going on. It’s ok, everything you mentioned is what happens to us who suffer from pulmonary fibrosis. You will find this forum is a safe place for you to vent, ask questions, and of course learn about others who going through t…[Read more]

    • I had asked about Steve? having these free cards or something on that order to travel or for hotel rooms Steve who was talking about hotel rates some free? ^ other things but could not find more info …THinking I might still be able to fly? haven’t discussed it with Dr.yet either. But would love a get-away really & had asked for more info….do you…[Read more]

      • Still waiting for a reply please!I had asked about Steve? having these free cards or something on that order to travel or for hotel rooms Steve who was talking about hotel rates some free? ^ other things but could not find more info …Thinking I might still be able to fly? haven’t discussed it with Dr.yet either. But would love a get-away rea…[Read more]

  • Kathleen Greco posted an update 5 months ago

    I have not been on to see or remark as much as I would like regarding news on PF/ IPF but do at glance at it then later I try to red more. I do believe this is such a valuable site for everyone who has P.F or in some way been touched by itas so many of us have.I have IPF & will be going into fourth yr…wow writing that yr down I must look up to…[Read more]

    • Hello again Kathleen, I am so happy you have a positive outlook. It’s nice to see and hear about a PF patient who is so active and also helping others as you are. Thank you

  • IHi, how is everyone doing,well here it is November & the season to be, Thankful!! ..Would everyone like to tell us all what you are grateful for? or many things you are grateful for…let’s spread the gratitude around.. I am grateful for Family…friends..that I am still here to enjoy them all..Thanking anyone who has been kind to me when I…[Read more]

    • Hi @kathleen-greco, this is a wonderful topic… I love it: thank you for posting! Being thankful is so important especially in today’s world where so much negativity is in the news and around the world. Focusing on gratitude is so good for our mental and emotional health. I’ve actually written many columns about it 🙂

      If you posted this in one…[Read more]

  • I’m sure everyone on this forum will agreed that exercise is the most important thing we can do for our IPF & just in general to feel & look well.I know I’ve been told this by my Dr.’s & in P.T. also.If we are limited in terms of exercise one can always do the breathing exercises or better yet both. There is one exercise you can do anywhere &…[Read more]

  • Thank you for putting my question out there about having an occasional drink, wine or some other preference. Also a big issue with me is swelling of legs ,feet & stomach protrusion (which stomach bloating is a side affect my Dr. said …as for other swelling it’s really becoming a big issues right now & waiting for answers… Maybe be due to…[Read more]

    • Hi @kathleen-greco, no problem, thank you for bringing it up to us as a question. It is a great one, and I am certainly interested in learning more about it as well! Sorry to hear you’re dealing with the swelling of your legs and feet too. This is a new symptom for me, and I’m not sure if it is medication-related or disease progression. I’ll need…[Read more]

  • I just read in here that one person who is on Esbriet had a glass of wine or rum & coke..can you (anyone) know if you can have mixed drink or wine??? I would love a glass of wine now &then.

    • Hi @kathleen-greco, this is an excellent question! Probably one best suited for the nurse of the anti-fibrotic drug you’re taking, but I don’t recall ever being told I couldn’t have a glass of wine on ofev. I’ve never “over done” it since starting the drug, but I definitely enjoy a glass of wine now and then…. perhaps I should have checked this…[Read more]

  • Ingredients
    2 1/4 Cups Water
    1 Cup Uncooked White rice (I like Jasmine rice)
    1 Cup Cucumber, grated (about 1 large cucumber)
    4 Sheets Nori, broken into pieces
    2 Cans Genova Albacore Tuna in Olive Oil, drained
    1/4 Cup Reduced-sodium soy sauce (GF if needed)
    1/2 Cup Plain, non-fat Greek yogurt (dairy-free plain yogurt works well too)
    /4 Cup…[Read more]

  • Winter can be scary for ppl with lung issues but also don’t dwell on it or it will become the season from hell.Go for walks (just cover mouth with scarf or face mask…gloves…hat & enjoy the clean brisk air…winter can get you out of a place that a lot of germs are confined in….long ago these nurses at hospital said they wish they could open…[Read more]

  • Kathleen Greco posted a new activity comment 10 months, 1 week ago

    the spelling was wrong in my question ..it’s Esbriet..

  • Kathleen Greco posted a new activity comment 10 months, 1 week ago

    thank you for letting me in on this wonderful group that provides so much info……

  • Kathleen Greco became a registered member 1 year, 4 months ago

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