Hi I was really active & doing well even my doc’s en pressed but then in Sept I had an exacerbation & everything when down hill .They say now I have 6 months to live. I cannot believe this & in total shock I am on oxygen for the first time. Was in hospital; on steroids .also but was able to com-home with the highest levels one could have at home. . will write more later very depressed. Hope everyone has a nice Christmas
Kathleen, my highest dosage was 8 lpm at exertion. I had the same problem when I started to move. At rest I was at 2-4 lpm and as soon as I stood up my heart rate shot up and o2 saturation went down considerably. Mark
Really,this has got me very concerned & usually I am not one to panic or anything…I am a therapist and take my own advice most times. This tie before first time in hospital I was on no oxygen at all but came home with it at 15 the highest anyone can come home on it ……without moving around 4-6 and a order for hospice care. but My son & i& I chose Hap home health care…going to give it my best shot.Will write more if interested have a meeting now,but either way THANK YOU so much that even gave me a little hope. How about you? what is going on there? Take Care Kathleen
Thank you Kathleen for thinking of me during this time when you are not feeling well and have been given much to think about. I am doing fine, I recently celebrated my 4th lungaversary and also had a favorable appointment with my transplant doctor. Yesterday I returned from California visiting family and touring the coast from Monterey to Morro Bay. Take care and check in. Mark.
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