Pulmonary Fibrosis News Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Kathleen Rainwater

Home Members Kathleen Rainwater
show less show more
Profile picture of Kathleen Rainwater

@kathleen-hill-rainwater

Hi all, hoping this finds you doing well, Ofev has struck! Actually I’m not sure if it is the Ofev or the increase in the cellcept as the craziness started at almost the same time as the increase in the dose. I have for the last 3 1/2 weeks been having diarrhea initially like I was peeing out my butt, sorry if that offends anyone. Started […] View
  • Activity
  • Profile
  • Friends 0
  • Groups 1
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Groups
  • Profile picture of Kathleen Rainwater

    Kathleen Rainwater posted an update 2 years, 7 months ago

    Hi all, hoping this finds you doing well, Ofev has struck! Actually I’m not sure if it is the Ofev or the increase in the cellcept as the craziness started at almost the same time as the increase in the dose. I have for the last 3 1/2 weeks been having diarrhea initially like I was peeing out my butt, sorry if that offends anyone. Started…[Read more]

  • Profile picture of Kathleen Rainwater

    Kathleen Rainwater replied to the topic Book Club in the forum Hobbies & Projects 2 years, 8 months ago

    Hi all…saw that someone was reading the Outlander Series.  Love those books and my hubby calls the TV program Scottish porn.  I just finished watching season 5 and while different from the book, was still good.  Been waiting not so patiently for the last of the series of the books as it has been postponed several times.

    I also like Dan Silva he…[Read more]

  • Profile picture of Kathleen Rainwater

    Kathleen Rainwater posted an update 2 years, 8 months ago

    Well a couple of days from being a month on Ofev and still have some still queasiness but nothing eating or drinking something with protein in doesn’t help. First set of labs out of the way and praying they continue to be good for the next few months. Hope you are all doing well as are we. Take care all stay safe and healthy

    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years, 8 months ago

      Hello Kathleen, thank you for your update and the hope is you continue to tolerate the side effects of Ofev. Take care, mark.

  • Profile picture of Kathleen Rainwater

    Kathleen Rainwater posted an update 2 years, 8 months ago

    Have been on OFEV for approx. 2 weeks now with only a little queasiness and none of the other side effects. I know that it is early in the game but I thank God and my prayer warrior team for helping get through this. I pray that I continue to have only minimal problems and that my lungs get no worse because of this drug. I want to thank all…[Read more]

    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years, 8 months ago

      Hello Kathleen, happy to hear you are tolerating the Ofev. Yes, this is a good sign for the future. Most people who experience gastro discomfort usually have it right from the beginning. Good luck and I hope it stabilizes your lung function. Best wishes, Mark.

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 2 years, 8 months ago

      Goodluck @kathleen-hill-rainwater! I’m so glad to hear you’re tolerating this drug so far, that is indeed good news. I hope it continues for you, and similar to Mark, really hope it stabilizes your lung function! Wishing you the best – keep in touch 🙂
      Charlene.

  • Profile picture of Kathleen Rainwater

    Kathleen Rainwater posted an update 2 years, 9 months ago

    Took my first pm and am dose of ofev and so far so good. Had homemade coconut ice cream after dinner and bedtime snack while reading of whole raw almonds and 2 pieces of 90% dark chocolate. About 30 minutes later took my cellcept and my ofev and prednisone and went to bed. No problems through the night or this morning. Had my 2 cups of fresh…[Read more]

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 2 years, 9 months ago

      Hi @kathleen-hill-rainwater,

      Thanks so much for letting us know how your first two doses of Ofev went – really glad to hear you’re tolerating it okay. I also take Ofev, and the side effects took a few weeks to set in (just wanting to be honest here) but the good thing was, they were very manageable as soon as I told my MD about them. Hopefully,…[Read more]

  • Profile picture of Kathleen Rainwater

    Kathleen Rainwater posted an update 2 years, 9 months ago

    Thanks for the welcome! I have just been notified by Open Doors that I qualify for their program and will get my ofev on Thursday. I have PM with ILD, PF and I am on cellcept every 12 hrs. for the PM. Anyone else out there taking these 2 medications together.

    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years, 9 months ago

      Hello Kathleen, this is great you will get the Ofev through the program. Congrats, Mark.

  • Profile picture of Kathleen Rainwater

    Kathleen Rainwater became a registered member 2 years, 11 months ago

    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years, 11 months ago

      Hello Kathleen, we are happy to have you as a pf forum member. Welcome!

Profile Photo Gwen Rivera Profile Photo G Bonaire

Login

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages

Who’s Online

There are no users currently online

Newest Topics

  • Who Has Inspired You? by Charlene Marshall
  • Has anyone seen the film “More Than Ever” about an IPF patient? by Frank Bigley
  • Love Letters by Christie Patient
  • Larry Runyon by Samuel Kirton
  • Home Fill oxygen systems by Natalie Mondor

Recent Replies

  • Deep Tissue (or red light) Laser Therapy
  • Deep Tissue (or red light) Laser Therapy
  • Deep Tissue (or red light) Laser Therapy
  • Why do IPF patients lose weight and how to help
  • Who Has Inspired You?

Members

Newest | Active | Popular
  • Profile picture of Malcolm Mann
    Malcolm Mann
    Active 1 hour, 23 minutes ago
  • Profile picture of Peter Kay
    Peter Kay
    Active 2 hours, 18 minutes ago
  • Profile picture of Stan Metcalf
    Stan Metcalf
    Active 4 hours, 54 minutes ago
  • Profile picture of Margaret
    Margaret
    Active 6 hours, 30 minutes ago
  • Profile picture of Mary Sue Pineda
    Mary Sue Pineda
    Active 6 hours, 51 minutes ago

Forums

  • Coronavirus (COVID-19) and Pulmonary Fibrosis
  • Healthy Recipe Sharing
  • Hobbies & Projects
  • Polls & Quizzes
  • Using Our Forums
  • Flash Briefings & Podcasts
  • Join the Discussion: Welcome to all PF/IPF Patients
  • 30 Days of PF
  • In Loving Memory
  • Wednesday Wins
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Caregivers and Spouses
  • Employment & Pulmonary Fibrosis
  • Clinical Trials
  • Research and Development
  • Esbriet (Pirfenidone)
  • Ofev (Nintedanib)
  • Canadians Living with Pulmonary Fibrosis
  • Pulmonary Fibrosis Awareness & Advocacy
  • PF Caregivers, Family Members & Spouses
  • Living with Pulmonary Fibrosis: 50+
  • Pre/Post Lung Transplant
  • Young Adults Living with Pulmonary Fibrosis (40 & Under)
  • Upcoming Medical Appointments: Q&As
  • Most popular topics
  • Topics with no replies


Pulmonary Fibrosis News Today

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy

Disclaimer

Pulmonary Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2023 All rights reserved.

©[current-year] KLEO Template a premium and multipurpose theme from Seventh Queen