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Kathy

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@kathyann

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    Kathy replied to the topic Side effects of OFEV in the forum Ofev (Nintedanib) 2 years, 11 months ago

    I just read your post – – diarrhea UGH .  I had a real struggle with it too.  Doctor reduced me the 100 mg and it was a little better but I also only felt comfortable going somewhere by taking one Imodium.  After over a year living this way my family doctor said for me to try taking a daily fiber tablet.  I take just one but you can take mor…[Read more]

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    Kathy started the topic Indigestion & Acid Reflux in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 years, 11 months ago

    About 3 1/2 yrs BEFORE I was diagnosed with PF – I saw an interesting segment on good ole “Dr. Oz” – I was interested because he had a specialist on talking about the relationship between acid reflux and asthma.  That having indigestion and/or reflux during the night when your laying down can cause you to breath the acid into your lungs which can…[Read more]

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    Kathy replied to the topic Rheumatioid Arthritis in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 years, 11 months ago

    Thanks Charlene – – I had my appt with my Pulmotologist is March – I had just started having joint pain in my shoulders and fingers and showed him the swelling but he quickly looked at my blood work 3 yrs earlier when I first saw him and said that I was RA negative therefore couldn’t have it and to see my family doctor.  It was at this time I was…[Read more]

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    Kathy replied to the topic Addressing Anxiety Following a PF Diagnosis. in the forum Upcoming Medical Appointments: Q&As 4 years, 11 months ago

    Anger – OH YES – – I can be concentrating on some task and can suddenly feel this aggravation building which is like tender on a fire which suddenly just explodes and I don’t know what I am sooooo angry at – but I am.  My doctor asked me if I was coping with anxiety – anger – depression and that it was very important for me to recognize what I…[Read more]

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    Kathy started the topic Rheumatioid Arthritis in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 years, 11 months ago

    Was diagnosed with IPF 3 1/2 yrs ago – have done well – started Ofev 3 months ago – doctor said it was better to start early rather than waiting for more changes.  Now I have RA (rhuematoid arthritis) – and wonder if Ofev will still be effective.  Given 5 mg Prednisone 3X a day – – and Paquanil (spelling ?) 2X day – – have not experienced any s…[Read more]

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    Kathy replied to the topic An Unusual Cough Remedy for Patients with Pulmonary Fibrosis in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 years, 12 months ago

    Always have to be careful about foods like pineapple that can react with med’s before you start them.

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    Kathy became a registered member 5 years ago

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 5 years ago

      Hi Kathy, thanks for joining the PF forums and welcome.

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