• Hello everyone!

    I don’t use any social media except Twitter so it’d be nice to follow some of you if you are online over there. I find it a great source of information, getting to know people and feeling a bit more motivated each day. Maybe we could some hashtags going to connect easily on the Twitter apps? Let me know if you’re interested!

    Find…[Read more]

  • Hello everyone!

    This was something I thought about a lot as there was a point in time where my Dad was regularly being admitted to Hospital due to the fact that quite early on in his diagnosis he had a bad case of pneumonia, and his disease progression worsened quite significantly due to this and the fact they unfortunately (and unknowingly) put…[Read more]

  • Hello everyone! Apologies for my absence over the last few months, I don’t know where the time goes!

    Popping in on this thread to see if anyone has any new recommendations for reading. I recently finished The Snowman by Jo Nesbo, the same author I’ve pretty much committed to all year round.

    I have however also loved Unnatural Causes by Dr…[Read more]

  • Hello everyone! Thank you for raising such an important topic Mark, and something which I think really pins down the need for emotional and psychological support to those diagnosed with PF – something which is severely lacking and that truly saddens me.

    I feel I may have mentioned this in my past posts, but I feel it is something I adopted…[Read more]

  • So, I was in Boston a few weeks back which always gives me a bug for eating seafood but of course those gorgeous buttery lobster rolls just aren’t something you can treat yourself to on a regular basis unless you want to make an enemy of your arteries. I looked for some simple healthy alternatives and had a go at this really easy and tasty seafood…[Read more]

  • So, I’ve had an idea I’ve been sitting on for some time and at present I’ve got a couple of weeks free before I start my studies in September so thought I would commit some more time to it. I’m an avid diary writer which is something I picked up from my Dad who was meticulous at filling one out for years, and it was something I encouraged him to…[Read more]

  • Katie Bagshawe replied to the topic Book Club in the forum Hobbies & Projects 5 months ago

    oO no I haven’t yet but I recall you recommending the movie! I might have a look for the book whilst on my holiday in a couple of weeks as it will give me more time to binge it.

  • Katie Bagshawe replied to the topic Book Club in the forum Hobbies & Projects 5 months ago

    Oh wow thanks for letting me know that RJ ( @rjday )  I wasn’t aware that she had since remarried. Such a heartbreaking tale, I’m so glad she found new happiness. Her ending to the book was so moving and brought me to tears. I’ve recently started reading a book by Sue Black who works in forensic anthropology that’s a really interesting (and quite…[Read more]

  • Katie Bagshawe replied to the topic Book Club in the forum Hobbies & Projects 5 months ago

    Oh my goodness I read When Breath Becomes Air a few years back and it broke my heart, Paul Kalanithi wrote so elegantly and eloquently. Such a sad loss.

    I believe it was this one, How Death Becomes Life that I saw on the bookshelf at Waterstones. I resisted the urge but I might buy it from the airport on my travels in a couple of…[Read more]

  • Hello all! I worked in computers in a former life so anything to do with advancement in technology interests me quite a bit. I’ve read about how a Radiologist in the UK is working on systems that automatically detect fibrosis on lung scans to help improve the diagnosis rates (I’ll post about this below). This piece of news suggests something…[Read more]

  • Anyone who likes memoirs/biographies then I recommend Stephen Westaby’s second book called The Knife’s Edge, I binged it in a couple of days. Really heartbreaking true cases of his time as a cardiac surgeon. If I haven’t mentioned it, his first book Fragile Lives was also a really good read. I also saw a new release which is memoirs from a…[Read more]

  • I used to love reading books about self healing as a teenager, and especially now self care and mindfulness is popular in the mainstream it’s nice to learn more. If you like the Scientific/Psychology then I really recommend Ruby Wax and her books about mindfulness and mental health, they’re really insightful at understanding the scientific…[Read more]

  • Wow Peter, what a small world! Great news that you had these scans as part of your diagnosis. Have you had any follow up MRI or CT scans alongside the FVC breath tests or was that solely to enable a diagnosis in your early symptoms? How have you found the support at Sheffield? My Father was initially referred there but found some of the…[Read more]

  • Thank you for your response Mark, and your kind words. I nearly cheered thin air reading that there are alternatives to FVC tests as they were awful for my Dad, and I never truly trusted how accurate the results would be. I’ll keep you posted, I’m hoping to gain some work experience in this area whilst I’m studying.

  • Hello everyone!

    So this September I’m going to be starting a course in Radiography and pursuing a future in clinical research associated with respiratory disease (in the hope of sticking with Interstitial Lung Disease). I’ve already been scouting in my area to see what exciting things are happening as regards trials and research associated with…[Read more]

  • Katie Bagshawe replied to the topic Book Club in the forum Hobbies & Projects 6 months ago

    As much as I want to think I’ll be someone who will adapt to e-reading, I just can’t but love the feel of advancing through a book! And I don’t really want to invest in something I might not use, but I’ll see if Amazon have any deals. It will always come in handy when I’m travelling.

    How about audiobooks? A friend of mine swears by them when he’s…[Read more]

  • Katie Bagshawe replied to the topic Book Club in the forum Hobbies & Projects 6 months ago

    Hello Chuck! Nice to hear of another avid reader. My Mum has an iPad actually so I might have a looksee at the Kindle app for now instead of investing in a proper e-reader. They turned the J.K. Rowling/Robert Galbraith series into a television show in the UK I believe, quite Sherlock style from what I remember and fairly interesting. Another one…[Read more]

  • Katie Bagshawe replied to the topic Book Club in the forum Hobbies & Projects 6 months ago

    oO I will look this up as it keeps popping up on my Amazon feed to watch. I always have to read the book version first though so I might just have to get my hands on it!

  • Hello Mark, thanks for sharing your story and also the important awareness you’re doing and that those around you are also going above and beyond to share your story in the hope of making the disease more known within the community.

    At present the status of Pulmonary Fibrosis is of similar status in the UK. The current statistics we have for…[Read more]

  • Thanks for sharing that news Lorraine, it’s encouraging to hear that governments and politicians are becoming more open minded to these important matters that play such a big role in so many peoples lives. Ultimately I hope it gives the people the right support should they have to face this kind of issue. And of course, hopefully open a…[Read more]

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