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  • Has any one been told that too much oxygen can be harmful? When I am sitting I don’t need oxygen but when I start moving around my level drops below 90% in a short time so I bought a home unit thinking I could just use it all the time and avoid the need to wire myself up, as I call it, when I start doing something. I was told that too much oxygen…[Read more]

  • Hello all, This may not be useful to all but I was diagnosed with IPF in Jan 2016. In 2017 my wife made a trip to Brisbane Australia when my FVC was 75%. We flew from LA to Brisbane, a 13+ hour flight. I have a POC with a 9 hour battery at 2l. I would use it for awhile, turn it down to 1l, then turn it off for a while. we made it to Brisbane with…[Read more]

  • I was diagnosed in Jan 2016 and started on IFEV  in July of this year after a lung function test showed I had declined 13% since the last one. The doctor suggested IFEV because the wife and I spend 3 months in Yuma Az every winter and Esbrite had a warning about being in the sun. I have not had any side affects so far. As to it helping I will…[Read more]

  • Kenneth Corsette posted a new activity comment 2 years, 6 months ago

    Yes, i WAS PUT ON OXYGEN RIGHT AT THE FIRST. 2 L BUT ONLY FOR exertion which the doctor said was anytime I was not sitting down. I cheat a little and do not use in in the house which may be the wrong thing to do but it’s a lot less hassle. I am sure that that will change down the line but for now it’s wonderful.

    • Hi Kenneth, thanks so much for getting back to me. Glad you have been put on oxygen if it helps you a bit, even if it is just for exertion. I also cheat a bit and prefer not to wear it sometimes when I know I should… you’re totally right about the hassle! 😉

      Hope you continue to do as well as possible and thanks for re-connecting.
      Charlene

  • Kenneth Corsette posted a new activity comment 2 years, 6 months ago

    Hello Charlene, I haven’t joined the forum before because of my problem with spelling. I was told I had IPF in Jan 2016. Went on OFEV this July. So far have not had any side effects.

    • Hi @kcorsette2, not to worry about that at all – the best of us aren’t great spellers! 😉
      This message was great, you did an awesome job! Sorry to hear of your IPF diagnosis in 2016… I remember that time well, my own diagnosis was in April 2016. Do you use oxygen currently? I’m really glad to hear the OFEV isn’t causing you any side effects, it…[Read more]

      • Yes, i WAS PUT ON OXYGEN RIGHT AT THE FIRST. 2 L BUT ONLY FOR exertion which the doctor said was anytime I was not sitting down. I cheat a little and do not use in in the house which may be the wrong thing to do but it’s a lot less hassle. I am sure that that will change down the line but for now it’s wonderful.

        • Hi Kenneth, thanks so much for getting back to me. Glad you have been put on oxygen if it helps you a bit, even if it is just for exertion. I also cheat a bit and prefer not to wear it sometimes when I know I should… you’re totally right about the hassle! 😉

          Hope you continue to do as well as possible and thanks for re-connecting.
          Charlene

  • Kenneth Corsette became a registered member 2 years, 6 months ago

    • Welcome to the PF forums Kenneth. Thanks for joining us!

      • Hello Charlene, I haven’t joined the forum before because of my problem with spelling. I was told I had IPF in Jan 2016. Went on OFEV this July. So far have not had any side effects.

        • Hi @kcorsette2, not to worry about that at all – the best of us aren’t great spellers! 😉
          This message was great, you did an awesome job! Sorry to hear of your IPF diagnosis in 2016… I remember that time well, my own diagnosis was in April 2016. Do you use oxygen currently? I’m really glad to hear the OFEV isn’t causing you any side effects, it…[Read more]

          • Yes, i WAS PUT ON OXYGEN RIGHT AT THE FIRST. 2 L BUT ONLY FOR exertion which the doctor said was anytime I was not sitting down. I cheat a little and do not use in in the house which may be the wrong thing to do but it’s a lot less hassle. I am sure that that will change down the line but for now it’s wonderful.

            • Hi Kenneth, thanks so much for getting back to me. Glad you have been put on oxygen if it helps you a bit, even if it is just for exertion. I also cheat a bit and prefer not to wear it sometimes when I know I should… you’re totally right about the hassle! 😉

              Hope you continue to do as well as possible and thanks for re-connecting.
              Charlene

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