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Kris manian

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@kmanian

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  • Profile picture of Kris manian

    Kris manian replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 9 months ago

    Thanks Charles, that is encouraging..

    God bless

  • Profile picture of Kris manian

    Kris manian replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 9 months ago

    Thanks a lot Dave for sharing your transplant story. It is encouraging. I am 71 and soon will be listed for a single lung transplant at UCSF. The coughing issue continuing after the transplant was concerning to me. If it is temporary until the IPF infected lung times out, it is ok I guess. Is the cough as bad as before LT? Do u take medication for…[Read more]

  • Profile picture of Kris manian

    Kris manian replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 9 months ago

    Hi Herold, I am glad that you are doing great with a single lung transplant.  I have IPF and I am going for a transplant. I was told that patient above 65 are given a single lung transplant. My worry was that the IPF affected other lung may progress and give the same coughing and shortness of breath symptoms. Looks like you are experiencing some…[Read more]

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    Kris manian replied to the topic STOP: Use Laser Therapy Part II in the forum Pulmonary Fibrosis Awareness & Advocacy 9 months, 3 weeks ago

    Thanks John for sharing your experience.
    My IPF is even more aggressive. I went from normal to requiring oxygen 24 hours in a matter of 8-9 months. I started OFEV 3 months ago and have not seen any improvement or stability.  I am hoping the laser therapy may bring some stability.
    Tomorrow is my first appointment for laser therapy. Let us see how…[Read more]

  • Profile picture of Kris manian

    Kris manian replied to the topic STOP: Use Laser Therapy Part II in the forum Pulmonary Fibrosis Awareness & Advocacy 9 months, 3 weeks ago

    Very nice Jack! Do you have any updates?
    I was hoping new updates in 2022. As I am planning to start this therapy. I am still searching for one that can do this in the Sanfran Bay Area.
    thanks
    kris

  • Profile picture of Kris manian

    Kris manian replied to the topic Transplant Age Requirement in the forum Join the Discussion: Welcome to all PF/IPF Patients 11 months, 2 weeks ago

    Thanks Christie for that great information.
    I also read your column about your mothers journey..Absolutely amazing. Thanks for sharing such valuable information. God bless
    kris

  • Profile picture of Kris manian

    Kris manian replied to the topic Passing along what is working for me. in the forum Ofev (Nintedanib) 11 months, 2 weeks ago

    Hi Jeff thanks for sharing valuable information. Are you still continuing with Plavix with Ofev? Is it working for you?

    I am going to have stent put in this week and will be on Plavix along with Ofev. So would like to know your experience.
    thanks

    kris

  • Profile picture of Kris manian

    Kris manian replied to the topic How are long-term (4+ years) OFEV users doing? in the forum Ofev (Nintedanib) 11 months, 3 weeks ago

    Hi Dr. Don thanks for sharing your experience with Ofev. I am curious about Metformin. Did you take it for  diabetes?

    how did that help with your PFT? Is it by controlling the blood sugar level?
    thanks

    kris

  • Profile picture of Kris manian

    Kris manian replied to the topic Buying an Oxygen concentrator in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 11 months, 3 weeks ago

    I forgot to check the notify button☹️

  • Profile picture of Kris manian

    Kris manian replied to the topic Buying an Oxygen concentrator in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 11 months, 3 weeks ago

    Hi Patti,

    if your mom has Medicare the health provider will automatically arrange for one. May be she is not in Medicare I guess. I have a portable pulse oxygen concentrator made by Inogen.. it has 4 hour rechargeable battery,

    I have a bigger noisy one that plugs in to the wall outlet, but has a long tube that is 50’ long, so I can move around t…[Read more]

  • Profile picture of Kris manian

    Kris manian replied to the topic Ofev and anticoagulants in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 11 months, 3 weeks ago

    Hi Brian,

    I just read your message with great interest as I have to go for a stent procedure and blood thinners after that. I will check with my cardiologist if this will work for me. I also do not want to quit Ofev.
    I just started using it.

    please update your current status if that worked for you. Thank you very much.

    kris

  • Profile picture of Kris manian

    Kris manian replied to the topic Pulmonary Fibrosis Secondary to Sarcoidosis in the forum Young Adults Living with Pulmonary Fibrosis (40 & Under) 11 months, 3 weeks ago

    Can OFev help with sarcoidosis,

    has any one tried it?

    I just came to know that one of my friends was diagnosed with this  so I am curios to know

    thanks

    kris
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  • Profile picture of Kris manian

    Kris manian replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 11 months, 3 weeks ago

    Thanks Christie. Good to hear that stent will not stop the tx.
    thanks

    kris

  • Profile picture of Kris manian

    Kris manian replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 11 months, 3 weeks ago

    Thanks Chas for your feedback.
    Can a stent patient be with out blood thinners and use alternate medication?

    thanks

    kris

  • Profile picture of Kris manian

    Kris manian replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 11 months, 4 weeks ago

    Thanks Dave!

    They did not do the stent as part of catheterization as they wanted the referring cardiologist to opine on it and she was not available.

    I just wanted to confirm. Thanks

    kris

  • Profile picture of Kris manian

    Kris manian replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 11 months, 4 weeks ago

    I am in the process of qualifying for transplant and getting tests after tests. I just got my angio and one of the arteries is clogged 70-80%. Was suggested to have stent. Will that disqualify me from getting a transplant?
    has any one had such experience?

     

    appreciate your feed back🙏

  • Profile picture of Kris manian

    Kris manian replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 12 months ago

    Wow! God bless

    continue strong

    kris

  • Profile picture of Kris manian

    Kris manian replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 12 months ago

    Hi Christie,

    I absolutely love the wealth of knowledge you have on this subject and I am glad that you share it. It really helps prepare for the transplant procedure.

    Again thanks a million🙏

    kris

  • Profile picture of Kris manian

    Kris manian replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 12 months ago

    Hi Dave awesome indeed. God bless you with a long and good life🙏

     

  • Profile picture of Kris manian

    Kris manian replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 12 months ago

    Thanks Dave for sharing the valuable info. How long was your post operation stay in hospital?

    God bless🙏

    kris

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