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Kris manian replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 9 months ago
Thanks Charles, that is encouraging..
God bless
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Kris manian replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 9 months ago
Thanks a lot Dave for sharing your transplant story. It is encouraging. I am 71 and soon will be listed for a single lung transplant at UCSF. The coughing issue continuing after the transplant was concerning to me. If it is temporary until the IPF infected lung times out, it is ok I guess. Is the cough as bad as before LT? Do u take medication for…[Read more]
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Kris manian replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 9 months ago
Hi Herold, I am glad that you are doing great with a single lung transplant. I have IPF and I am going for a transplant. I was told that patient above 65 are given a single lung transplant. My worry was that the IPF affected other lung may progress and give the same coughing and shortness of breath symptoms. Looks like you are experiencing some…[Read more]
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Kris manian replied to the topic STOP: Use Laser Therapy Part II in the forum Pulmonary Fibrosis Awareness & Advocacy 9 months, 3 weeks ago
Thanks John for sharing your experience.
My IPF is even more aggressive. I went from normal to requiring oxygen 24 hours in a matter of 8-9 months. I started OFEV 3 months ago and have not seen any improvement or stability. I am hoping the laser therapy may bring some stability.
Tomorrow is my first appointment for laser therapy. Let us see how…[Read more] -
Kris manian replied to the topic STOP: Use Laser Therapy Part II in the forum Pulmonary Fibrosis Awareness & Advocacy 9 months, 3 weeks ago
Very nice Jack! Do you have any updates?
I was hoping new updates in 2022. As I am planning to start this therapy. I am still searching for one that can do this in the Sanfran Bay Area.
thanks
kris -
Kris manian replied to the topic Transplant Age Requirement in the forum Join the Discussion: Welcome to all PF/IPF Patients 11 months, 2 weeks ago
Thanks Christie for that great information.
I also read your column about your mothers journey..Absolutely amazing. Thanks for sharing such valuable information. God bless
kris -
Kris manian replied to the topic Passing along what is working for me. in the forum Ofev (Nintedanib) 11 months, 2 weeks ago
Hi Jeff thanks for sharing valuable information. Are you still continuing with Plavix with Ofev? Is it working for you?
I am going to have stent put in this week and will be on Plavix along with Ofev. So would like to know your experience.
thankskris
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Kris manian replied to the topic How are long-term (4+ years) OFEV users doing? in the forum Ofev (Nintedanib) 11 months, 3 weeks ago
Hi Dr. Don thanks for sharing your experience with Ofev. I am curious about Metformin. Did you take it for diabetes?
how did that help with your PFT? Is it by controlling the blood sugar level?
thankskris
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Kris manian replied to the topic Buying an Oxygen concentrator in the forum Diagnosis Information and General Questions 11 months, 3 weeks ago
I forgot to check the notify button☹️
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Kris manian replied to the topic Buying an Oxygen concentrator in the forum Diagnosis Information and General Questions 11 months, 3 weeks ago
Hi Patti,
if your mom has Medicare the health provider will automatically arrange for one. May be she is not in Medicare I guess. I have a portable pulse oxygen concentrator made by Inogen.. it has 4 hour rechargeable battery,
I have a bigger noisy one that plugs in to the wall outlet, but has a long tube that is 50’ long, so I can move around t…[Read more]
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Kris manian replied to the topic Ofev and anticoagulants in the forum Diagnosis Information and General Questions 11 months, 3 weeks ago
Hi Brian,
I just read your message with great interest as I have to go for a stent procedure and blood thinners after that. I will check with my cardiologist if this will work for me. I also do not want to quit Ofev.
I just started using it.please update your current status if that worked for you. Thank you very much.
kris
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Kris manian replied to the topic Pulmonary Fibrosis Secondary to Sarcoidosis in the forum Young Adults Living with Pulmonary Fibrosis (40 & Under) 11 months, 3 weeks ago
Can OFev help with sarcoidosis,
has any one tried it?
I just came to know that one of my friends was diagnosed with this so I am curios to know
thanks
kris
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Kris manian replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 11 months, 3 weeks ago
Thanks Christie. Good to hear that stent will not stop the tx.
thankskris
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Kris manian replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 11 months, 3 weeks ago
Thanks Chas for your feedback.
Can a stent patient be with out blood thinners and use alternate medication?thanks
kris
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Kris manian replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 11 months, 4 weeks ago
Thanks Dave!
They did not do the stent as part of catheterization as they wanted the referring cardiologist to opine on it and she was not available.
I just wanted to confirm. Thanks
kris
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Kris manian replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 11 months, 4 weeks ago
I am in the process of qualifying for transplant and getting tests after tests. I just got my angio and one of the arteries is clogged 70-80%. Was suggested to have stent. Will that disqualify me from getting a transplant?
has any one had such experience?appreciate your feed back🙏
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Kris manian replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 12 months ago
Wow! God bless
continue strong
kris
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Kris manian replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 12 months ago
Hi Christie,
I absolutely love the wealth of knowledge you have on this subject and I am glad that you share it. It really helps prepare for the transplant procedure.
Again thanks a million🙏
kris
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Kris manian replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 12 months ago
Hi Dave awesome indeed. God bless you with a long and good life🙏
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Kris manian replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 12 months ago
Thanks Dave for sharing the valuable info. How long was your post operation stay in hospital?
God bless🙏
kris
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