My doctor told me to walk, but I get so fatigued even from changing my clothes. I’m 82 yrs

What is a Y pigtail?

My pulmonologist says that my palpitations are physiological, not pathological, because the heart needs to work twice as hard because my lungs don’t produce enough oxygen. Like you, if I’m resting, I’m ok

I was diagnosed almost 4 years ago. Since then, I have been using Esbriet. I had no symptoms at all until last August, when my O2 started dropping with exertion, and I was then put on oxygen during the night and when going out. In September, I had a respiratory test. My lung function went from 50% to 70%, but my oxygen production went from…

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I’m very confused. I was diagnosed with Lung Fibrosis 3 years ago and was asymptomatic until last week. I was prescribed an oxygen home unit and a portable concentrator. My problem is that the portable is too heavy for me, as I have fibromyalgia and back surgery. The pain is horrible each time I use the portable, which weighs almost 7 lbs…

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This is an update. After 3 years using Esbriet and no symptoms, now things are going downhill. My oxygen level is affected, and I was put on oxygen using 3L during the day and 2L at night.

I was diagnosed in 2022. I was put on Esbriet, taking 267mg pills x 3, 3 times a day. In other words, I was taking 9 pills a day. For all these three years, I didn’t have any symptoms at all. I tolerated the medicine very well; my only issue was the sun, and that resolved. Now I started getting dizzy, which I attributed to the heat. Thank…

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Daniel, thanks for sharing your story with us!

According to most of the replies, Esbriet users are getting this fatigue after years of using it. I wonder if anyone consulted their doctors or Esbriet about this and if they gave an opinion.

Thanks for sharing!

Thanks for sharing.

I use Famotidine twice a day. Thanks for sharing.

I hope you get better. Thanks for sharing.

This has been exactly my problem. I started experiencing fatigue in February. Not all the time, for example, going from one room to another or changing my clothes.

Hi Ron, for a long time since my gallbladder surgery I have had gastro problems. Nevertheless, I haven’t had issues with pirfenidone. Since my first dose, I took them with Dan Active, a liquid probiotic. Another brand is Activia. I think it has helped me. I hope this helps.

Hi all. I have been using Esbriet since August 2022. My last CT scan in July showed that the fibrosis had not advanced at all. My pulmonologist says I’m doing well and his only worry is my liver. My oxygen level is at 97 – 99. But since February I feel fatigued by doing minimal things like walking from one room to another or changing…

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After more than a year using Esbriet I’m now experiencing joint pain. Is anyone else experiencing this? I don’t know if it’s related to Esbriet. I’m now taking 9 pills a day.

Thank you all for your input.  I really appreciate it!

I started the 3 x 3 pills a day in July without any side effects, but now I get very dizzy after taking them.  Does anyone know the reason for this?  Thanks.

Since 2015, I noticed that every time I had a CT Scan for back pain, or when I was at Mayo Clinic for atrial fibrillation, the findings on results said mild fibrosis lung disease.  Not once any doctor mentioned that or suggested treatment.  In 2022 a cousin mentioned that my aunt’s cause of death was fibrosis so I made an appointment with a… Read more

Do you get dizzy after taking each dose of Esbriet?

I really don’t know if I can post this here, if not please remove it.  I have had a big problem with the sun’s reaction.  I get a red itchy rash on my hands, neck sides/back, and face.  I had a problem with the sun reacting with the sunblock which caused a rash too.  I found a brand (other than Columbia) specializing in all kinds of SPF 50+… Read more

I started Esbriet last August with minimal side effects, only fatigue.  In February I developed skin itch on my neck, chest, and back of my hands.  Pulmo suspended treatment for one month.  As soon as I used Esbriet again in April the itch started again!  I’m now using 2 x 3 a day.  Pulmo wants me to start 3 x 3 but I couldn’t tolerate it… Read more

Hello there.  I started taking Esbriet in August 2022.  I couldn’t tolerate the 3 x 3 daily doses but was doing good on 2 x 3.  I always felt a bit without energy but other side effects were tolerable.  Although my CT scan says I have extreme lung damage, I don’t have symptoms.  I’m neither short of breath, nor coughing, and my oxygen level is… Read more