@lorena
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Lorena McManus replied to the topic Gabapentin For IPF-Related Cough? in the forum Diagnosis Information and General Questions 2 years, 1 month ago
Hi Charlene,
Yes gabapentin is documented as a treatment for the dry cough associated with PF. There are research articles documenting this practice. Will send along when I locate them. Our doctors in Canada, especially our palliative docs who are well versed in it, use it more often. Cheers!
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Lorena McManus replied to the topic To Our Canadian Members: Happy Canada Day! in the forum Canadians Living with Pulmonary Fibrosis 2 years, 5 months ago
Happy Canada Day to you Charlene! I am grateful for many things about Canada. I am thankful for a home, and enough food to eat and all the life I have that I often take for granted, a life that many around the world don’t have. Many don’t even know where their next meal is coming from and live in squalor. Sadly, many are children. Canada has g…[Read more]
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Lorena McManus replied to the topic Way to handle side effect nausea in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 5 months ago
There are medications to counteract the side effects the side effects of antifibrotic medications and I’m not sure why doctors aren’t prescribing them. Some examples are Imodium for diarhhea and Zofran for nausea and vomiting. Please ask your physician about them as other folks have had success.
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Lorena McManus replied to the topic can someone talk about the end days in the forum Diagnosis Information and General Questions 2 years, 6 months ago
Hi Jan,
You are very welcome. It is so often the fear of the unknown that haunts us. Unfortunately I’m not familiar with serrapeptase nor has it been mentioned in any of the literature I have read. What I do know and has been recently reinforced at a symposium I attended is that opioids are the most effective treatment for shortness of breath, e…[Read more]
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Lorena McManus replied to the topic can someone talk about the end days in the forum Diagnosis Information and General Questions 2 years, 6 months ago
There is a section under files I believe that has some information on Hospice/Palliative care. It is such an important and good question. So many of us bemoan the lack of control this disease leaves us with. Planning how we would wish our life to end is a way to have some control. I worked in Palliative/Hospice Care for most of my Career as a…[Read more]
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Lorena McManus posted a new activity comment 2 years, 6 months ago
Hello Everyone. I am so frustrated by the fact that there are medications that doctors can prescribe that counter act the side effects of he anti-fibrotic but so many people aren’t being given the option of trying them. From the reports I have seen they are very effective. One is Imodium for diarrhea and the other is for nausea and vomiting c…[Read more]
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Lorena McManus replied to the topic IPF patient wonders if current symptoms are IPF related or not in the forum Diagnosis Information and General Questions 2 years, 7 months ago
Good morning everyone. I just wanted to reply in general to the posts related to increased coughing and phlegm. There was mention of a change in colour of the phlegm; one person mentioned a greenish tinge and another mentioned some red. Please always report these changes to your doctor ASAP. Along with your other symptoms both can be indications…[Read more]
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Lorena McManus became a registered member 2 years, 7 months ago
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Hello Lorena, welcome to your pulmonary fibrosis forum. Thank you for joining.
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Hi @lorena,
Great question/topic! There are lots of different medications out there that can help with the side effects of the two antifibrotic medications, although not all doctors are willing to prescribe them and in my experience, over-the-counter medications (ie. Immodium) aren’t enough. I know lots of people who’ve lived off of immodium…[Read more]