Mark replied to the topic Lung Biopsy in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 months, 3 weeks ago
I was diagnosed in 2016, the first thing the doctor wanted to do was a open lung biopsy.
no CT scan, no PFT.
as I researched everything I could about this surgical procedure. I asked the following questions
would my treatment change?
would it change the diagnosis?
then help me understand, I have compromised lungs, you now want to cunt into…[Read more]
Mark replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 1 year, 4 months ago
Like many who have responded, I did a lot of research about my medical issues. I was diagnosed in 2016. I am currently 66 and only stared supplemental oxygen 2/22/2022 and only 2L when exercising, and doing extensive yard or house work. I do not take any medication for my lung issues, although I do take several for my RA and Zo…[Read more]
Mark replied to the topic Cardiopulmonary exercise (CPET) in the forum Diagnosis Information and General Questions 1 year, 6 months ago
I have not had this test, as part of my polumnary tests.
i did do a similar test as an athlete and stress study while in high school and college.
from what I researched and remember it is testing how oxygen is being used in the body.
could be Canadian, or just your medical team.
my medical team is with the VA here in the US.
Mark replied to the topic Biopsy… yes or no? in the forum Upcoming Medical Appointments: Q&As 1 year, 6 months ago
when I was first diagnosed with ILD and PF, the polumnologist in Tucson wanted to do a full open lung biopsy. I did a lot of research and talked to a few who had been through such, then asked this question
why would I agree to have my chest cut into, my lungs cut into in multiple places, to get a scraping to verify the diagnosis, oh and…[Read more]
Mark replied to the topic Inhaler use in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 6 months ago
Happy Veterans Day to all
a polumnologist I had in Arizona had me using symbicort twice a day and albuterol as needed for labored breathing.
i since moved to the St. Louis area, my new polumnologist asked about the inhalers, I said the symbicort just made nausea and tired many times, she said, stop and see what happens, now off that for the last…[Read more]
Mark became a registered member 1 year, 11 months ago
Thanks for joining the PF forums Mark. Welcome!