Biography

Name

Mark

Nickname

lostsurfer

Year of Birth

1955

Gender

Male

Location

Fairview Heights Illinois

Relationship

Patient

Short Bio

Diagnosed around 2015, told probably cause by rheumatoid and arthritis, and /or due to exposure to many carcinogenic chemicals and powders

 

Type of Diagnosis

IPF

Treatment / Medical Facility

VA facility St Louis, currently on just a monitor phase of treatment

Current medication regimen

Nine

Lung transplantation status

considering later

Supplemental Oxygen

no

Best advice for PF symptom management

Ask lots of questions, read everything you can, and sift through and disregard what seems to have little or no basis in reality.

listen and question and work with your medical team

change medical teams if not satisfied, in many ways yiu hire them as experts to help you, though they do not have answers to everything,  and even if “the books” say a number range is “normal” whose normal?

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

Other

How long have you or the person that you are caring for had PF?

6+ years

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