Biography

Name

Lou Body IV

Nickname

lou-body-iv

Year of Birth

May 18, 1939

Gender

Male

Location

Florida

Relationship

Patient

Short Bio

I’m 80 yo. Was diagnosed with Familial Fibrosis in August, 2019. My sister has it and so did my late mother. I take Esbriet and, for now, remain quite active golfing and swimming.

Type of Diagnosis

familial/genetic PF

Treatment / Medical Facility

Mayo Clinic Jacksonville

Current medication regimen

Esbriet

Lung transplantation status

ineligible

Supplemental Oxygen

no

Best advice for PF symptom management

Do what my doctor suggests.

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

Several years in development.

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