@Lou Body IV•
Joined May 2020 •
Active 2 weeks ago
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Biography
Name
Lou
Nickname
Lou Body IV
Last Name
Body IV
Year of Birth
May 18, 1939
Gender
Male
Location
Florida
Relationship
Patient
Short Bio
I’m 80 yo. Was diagnosed with Familial Fibrosis in August, 2019. My sister has it and so did my late mother. I take Esbriet and, for now, remain quite active golfing and swimming.
Type of Diagnosis
familial/genetic PF
Treatment / Medical Facility
Mayo Clinic Jacksonville
Current medication regimen
Esbriet
Lung transplantation status
ineligible
Supplemental Oxygen
no
Best advice for PF symptom management
Do what my doctor suggests.
Are you currently taking an anti-fibrotic medication?
yes
How did you find us?
PF News Website
How long have you or the person that you are caring for had PF?
Several years in development.
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